International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Tuller & Rehmeyer in STAT: Why did it take the CDC so long to reverse course..

Discussion in 'General ME/CFS News' started by Kalliope, Sep 25, 2017.

  1. Kalliope

    Kalliope Senior Member

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    Norway
  2. Esther12

    Esther12 Senior Member

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    This looks really strong. Can't believe so much is going on that it seems to have gotten so little attention on here.
     
  3. Hip

    Hip Senior Member

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    Great work by journalists Julie Rehmeyer and David Tuller.

    From their STAT article, the following recommendation is excellent and very important:
    It is crucial for the CDC and NIH to tackle the prevalent myths about ME/CFS (ie, the prevalent myths that many doctors still hold, that ME/CFS is "all in the mind").
     
    Last edited: Sep 25, 2017
    Helen, Izola, Barry53 and 13 others like this.
  4. Esther12

    Esther12 Senior Member

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    IT does seem that big organisations aren't great at admiting they've made a mistake, but it's vital for progress that they do.
     
  5. Yogi

    Yogi Senior Member

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    James Coyne promoted this story:

    https://www.coyneoftherealm.com/blo...hronic-fatigue-syndrome-publicize-the-changes
     
    *GG*, Izola, Luther Blissett and 10 others like this.
  6. Demepivo

    Demepivo Dolores Abernathy

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    In response Michael Sharpe has emerged from his lair



     
  7. Yogi

    Yogi Senior Member

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    Leave comments to appreciate David Tuller's work.

     
    Luther Blissett, Joh, ahimsa and 6 others like this.
  8. Yogi

    Yogi Senior Member

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    What is Michael Sharpe on? He is such a liar. Worse than Donald Trump.
     
    Izola, Luther Blissett, MEMum and 2 others like this.
  9. Yogi

    Yogi Senior Member

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    This has been retweeted by many non ME people. Must be concerning for the PACE people.

    Please RT:

     
    Luther Blissett, Jan, Joh and 8 others like this.
  10. Demepivo

    Demepivo Dolores Abernathy

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    Very true. The reason Michael Sharpe hates social media is that he can't control it.

    Wessely, White & Sharpe prefer having (insidious) quiet words with publishers and university department heads to achieve their objectives...
     
    Last edited: Sep 26, 2017
  11. BurnA

    BurnA Senior Member

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    Yes, I don't think anyone of them would have thought that the internet would eventually be their downfall.
    If it wasn't for that damn pesky internet they would have gotten away with it all.
     
    Izola, Luther Blissett, Jan and 12 others like this.
  12. Solstice

    Solstice Senior Member

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    Lovely how every time they throw a ball up there's a legion of people to knock it straight out of the park.
     
    Luther Blissett, Jan, Wally and 8 others like this.
  13. Barry53

    Barry53 Senior Member

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    Interesting acknowledgement by MS that the article's assertions do indeed indicate bad science. He just isn't up to admitting it's true ... yet.
     
  14. Esther12

    Esther12 Senior Member

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    Bump, just because it's incredulous that this isn't even onto a second page of comments!

    edit: I meant 'incredible' - a combo of typo and auto-correct?
     
    Last edited: Oct 9, 2017
    Izola, Luther Blissett, mango and 2 others like this.
  15. Joh

    Joh Inactivist

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    To bump this thread, this is the tweet by the director of stats.org (professor of mathematics) Michael Sharpe refers to:
     
  16. Liessa

    Liessa

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    I imagine this is due to STAT being less on 'our' radar than some other organisations. Luckily it is on the radar of various scientific readers, or so I imagine. So even if pwME aren't picking up on it (much), it still is a very valuable addition to the info out there :D
     
  17. Wally

    Wally Senior Member

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    @ Liessa - good point.

    For those who are not familiar with STAT - here is how this organization is described. See, https://www.statnews.com/about/

     
  18. Stuart

    Stuart Senior Member

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    Uh... because NIH/CDC started it?

    Come on, show of hands, who has at least has read Osler's Web?
     
    duncan, Louie41 and Isaiah 58:11 like this.
  19. Sea

    Sea Senior Member

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    People's energy is very limited. For me I have thought what has been happening to our forum was so important that it's where most of my energy has gone, especially knowing that if I don't keep up the info probably won't be there later.

    I am grateful that there are others not involved in the forum who have been able to continue with bringing important info to public awareness
     
    Last edited by a moderator: Oct 20, 2017
    slysaint, Valentijn, Izola and 3 others like this.

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