To those taking hydrocortisone: how much are you on?

[alice111]

just wanted to get an idea of how much people are taking.
The dose recommended seems to vary, and since us M.E -ers seem to be ultra sensitive I wanted to know if some people are taking tiny doses, or high doses?
if you could please note the following:
-your daily dose
-what time you take it at
-how long you have been taking it for
and of course if you are up for it/ have the time how it has helped or hindered.

feel free to post if you are taking a cortef equivalent as well such as prednisone or dex.
thanks so much!

 

[*GG*]

I took some of this some time ago, perhaps 10mg? Didn't seem to help at all.

GG

 

[Ema]

I've taken hydrocortisone for several years on and off. I seem to dip in and out of adrenal insufficiency for some unknown reason on top of the hypocortisolism many of us experience with ME/CFS. I also have a family history of Addison's disease.

Steroids have definitely helped me both in functioning and in immune response but like everything can be tricky to dose and are not a miracle cure.

I take 0.25 mg dex at bedtime now and 20-25 mg of HC during the day. I've taken just about every combination of steroid and the combination of a long acting steroid with the shorter acting HC is what seems to work best for me.

 

[alice111]

@Ema do you take the 20-25 HC spread out or all at once?

 

[Ema]

@Ema do you take the 20-25 HC spread out or all at once?

Spread out.

Usually something like this:

7am 5
1230pm 5
330pm 5
630p 2.5
Bed 2.5

 

[roxie60]

I was just prescribed hydrocortizone/cortef but I'm not sure if I should take it. I supposedly have lyme and I do have coinfections and steroids are thought to be not a good idea. Llmd wants me to take 5 mg am, 5 mg 12n, 2.5mg 4p then take. Cortisol manager at bed. I guess I'm scared to add another drug.

 

[Jersono]

I think 10mg but it didn't help much

 

[roxie60]

12.5 if I dont sleep thru the dose.