Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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*Time for Action Campaign*

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by VillageLife, Oct 4, 2010.

  1. VillageLife

    VillageLife Senior Member

    United Kingdom
    This is already posted else where on the forum but I thought I would post it here, because many people just visit these forums to read XMRV news and we dont want anyone missing this important post.

    === Please Forward Widely ===

    "Time for Action" Campaign
    For ME/CFS Patients, Their Families and Friends

    Organizers: Robert Miller, Rivka Solomon, Charlotte von Salis
    Contact: bobmiller42@msn.com

    On the heels of the September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let our federal health agencies know we are expecting big changes. The more they hear from us now, the more they'll listen to us next time we meet. Our "Time for Action" campaign is advocacy made easy -- yet it will have a huge impact.

    We ask patients, their families and friends to email, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question every day, starting today. (Please Cc: emails to Robert Miller at: hebs1reel@yahoo.com)

    Dear Directors Collins and Fauci,

    What have you done for ME/CFS today? Patients and their families are waiting.

    Name: John Doe (or John)
    Location: Miami, FL
    Time: Sick 12 years

    Contact info:
    1) National Institutes of Health
    Director Francis Collins
    Email: collinsf@od.nih.gov
    Cc to: hebs1reel@yahoo.com
    Phone: 301-496-2433
    Fax: 301-402-2700

    2) National Institutes of Allergy and Infectious Disease
    Director Anthony Fauci
    Email: afauci@niaid.nih.gov
    Cc to: hebs1reel@yahoo.com
    Phone: 301-496-2263
    Fax: 301-402-3573

    For inspiration, here's our "How To" video: http://www.youtube.com/watch?v=z5eLRxtQLok
  2. Recovery Soon

    Recovery Soon Senior Member

    I just sent one and the Collins' address was returned for delivery failure:


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