I understand that suggestion a diagnosis to a doctor may not be an intelligent move, but Willow, I have been in 40 doctors in three years! 40! And no one of them have a clue about my case. What else should i do? I have to research by myself, or let myself die... Most of the doctors i have visited are the TOP (I can't imagine how the lower end are) and they are so arrogant... I don't know what else to do...
andre. I went to over 30-35 different doctors and specialists who didn't know a thing before I found a ME/CFS specialist though my states ME/CFS association (which only happened after I'd been sick for over 10 years). I'd probably still be looking if I hadn't worked out my issue myself and contacted them. Since then I've seen quite a few CFS specialists.
You cant hit out blindly with this.. if you may have ME/CFS you need to go to a specialist in this, do not randomly keep going to doctors as you are using burning up your energy and time. (It doesn't matter that they are TOP doctors if they don't know much about the condition you have and cant even diagnose it. Random top doctors do not know everything and unfortunately "top" doctors are often arrogant so if they don't understand an issue they can be quite bad.
For me to get a good GP (not talking about a good ME/CFS specialist here as I have those too).. I've at times gone with someone just out of medical school as often they don't have such preconceived notions on ME/CFS and I can take good info in and educate them (and you cant educate a arrogant doctor). They can be more willing to be doing their job well while learning new things .
We all have doctor hating days
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Im very sorry to hear that you are in the not too uncommon situation of doing that horrible diagnoses and dr hunt.
When you are desperate, you take desperate measures. Two days ago I finished a three day of juicing fasting, just veggie juices, no fruits. I have to say that the first day of the fast was awful, but the second and third were pretty ok. Some symptoms dissapeared instantly, like hair loss (i didn't lose one single hair during three days), the burning skin sensation, the tingling, the water retention and my skin looked amazing. Of course, i felt weak during the fast and I think the candida got worse (wonder why).
Anyway, here is my dilemma... either I starve myself to death doing juicing fasting (but without symptoms) or I keep eating to keep alive with a bunch of symptoms, what to do, what to do...
Your severe fatigue went too? Im assuming you have that too if you are on a forum such as this.
If a juice fast cures you, I cant see why you cant trial and error one at a time other things to see what else you can take other then juice. There'd be other things you can have, you wont starve on fruit.
I do completely understand just how very hard it is to have a limited diet is to stick with as I have big diet issues too and are currently hence eating things which make me ill as my diet is quite limited (in my case I cant eat much fruit at all as I have severe issues with carbs and fruit has carbs, I can only eat one small piece of fruit per day).
I knew someone who was a fruitarian due to his beliefs ...I may of wrote that "f" word wrong but he was living entirely on fruit.. another level further then just being vegan.. though I dont recommend this in any way, I'd like to say that this guy was actually healthy and didn't starve).
To starve you need too low calories or too low carbs.