Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Three ways to mark today, Severe ME Day - #MEAction

Discussion in 'Action Alerts and Advocacy' started by Sasha, Aug 8, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Excellent ideas from #MEAction:

     
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  2. Sasha

    Sasha Fine, thank you

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    I can't tweet but I'm doing this one, for sure!
     
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  3. K22

    K22

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    I agree with taking positive for the severe on this day & generally think me action are fab. I would not call it "celebrate" at all (very odd choice of word) but marking, the other half of the purpose of the day is to remember those who have not made it through to this day including Sophia Mirza whose birthday it would have been today
     
  4. Sasha

    Sasha Fine, thank you

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    Good point about 'celebrate' - I've changed my thread title accordingly and have made it clear that Severe ME Day is today.

    I really hope those who can will donate to the END ME/CFS study.

    Raising awareness is great - and raising money is key to making rapid research progress. :cool:

    I think the next two or three years - the rixutimab trials, the END ME/CFS study, the CII microbiome study - could be transformative for us.
     
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  5. worldbackwards

    worldbackwards A unique snowflake

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    Excellent blog here by disability activist Catherine Hale about her illness:

    http://limitedcapability.blogspot.co.uk/2015/08/severe-me-day-2015.html
     
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  6. Alison2

    Alison2

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