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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I wouldn't be embarrassed to post that .I have a sudden "good day" every 4/5 years or so and although it is never a proper remission I feel good and able to do things and think clearly. Every time one of these happens I take a note of everything I remember doing / eating / taking etc for the days before.
The only things that comes up more than once is "pizza". Bizarre but true in the evening before my last two "good days" (and one distant) previous to that I was well enough to go to a local restaurant (not the same one) and eat pizza.
That means that I was actually well enough to go out, that I wanted pizza (not a very frequent meal for me) and then, even after an evening out to eat I actually felt better the next day.
This is probably a huge red herring and I am embarrassed to be posting. Just mentioning because it is so odd. It doesn't last and cannot be repeated at will.
I have a sudden "good day" every 4/5 years or so and although it is never a proper remission I feel good and able to do things and think clearly. Every time one of these happens I take a note of everything I remember doing / eating / taking etc for the days before.
The only things that comes up more than once is "pizza". Bizarre but true in the evening before my last two "good days" (and one distant) previous to that I was well enough to go to a local restaurant (not the same one) and eat pizza.
That means that I was actually well enough to go out, that I wanted pizza (not a very frequent meal for me) and then, even after an evening out to eat I actually felt better the next day.
This is probably a huge red herring and I am embarrassed to be posting. Just mentioning because it is so odd. It doesn't last and cannot be repeated at will.
I've never had even an hour of full remission, but your stories reminded me of this movie - https://en.wikipedia.org/wiki/Awakenings , some of you may like it.
Deltrus, may I ask how long your " little " remissions last? Are they always about the same length of time? Are they always of the same "intensity" or percent of remission or do they vary?
Don't mix up cause and effect
It could as well be the case that since you are better for some reason your body temperature starts rising.
I also have no idea. What I do know is that I usually don't do well on higher temperatures.