Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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"Thirty Years of Disdain: How HHS Buried ME"

Discussion in 'Information and Resources' started by Denise, May 6, 2015.

  1. medfeb

    medfeb Senior Member

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    I wanted to let you all know that I finished updating Thirty Years of Disdain to incorporate feedback, for readability, and to update it to include the key events through the fall of 2015.

    I also created a more summarized version as promised. Unfortunately, the shorter version is still 66 pages long plus references. I had hoped to keep it to 10-15 pages but was unable to and still effectively tell the story. Hopefully, this version is short enough to be more consumable.

    The shorter document can be found at http://bit.ly/The_Burial_of_ME_Summary. The updated, longer document is available at http://bit.ly/The_Burial_of_ME_Background

    If you have any questions or feedback, don't hesitate to PM or email me at medimmock@yahoo.com
     
  2. Snowdrop

    Snowdrop Rebel without a biscuit

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    Can other people access this shorter document? I'm having trouble.
    And is it possible/a good idea to pin this document somewhere on PR?

    Also, if I could hear from @medfeb if there are any caveats to sharing this document?
     
    Sean likes this.
  3. medfeb

    medfeb Senior Member

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    Hi Snowdrop,
    I have not heard that other people have had trouble accessing. Could you try copying the link - http://bit.ly/The_Burial_of_ME_Summary - into the browser and see if that helps?

    There are no caveats on sharing the document although I would prefer to have the link shared versus the actual document as I may want to update it in the future. If that's a problem, PM me.
     
    Snowdrop likes this.
  4. mango

    mango Senior Member

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    @medfeb is there any chance you would consider publishing the updated longer document i epub format? pretty please? i can't read this much on my laptop screen, but i'd love to read it on my e-reader.

    (i tried converting the pdf myself, but unfortunately the formatting turned out very weird which made it very difficult to read.)
     
  5. medfeb

    medfeb Senior Member

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    I can try. Can you tell me how you tried converting the document to work on an e-reader? I don't know how to do that.
     
    ukxmrv likes this.
  6. mango

    mango Senior Member

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    great, thank you so much! i'll keep my fingers crossed :)

    i used Calibre (simply because i had it installed already), the program i use to transfer ebooks from my laptop to my e-reader. it usually works great with many different formats.
     
  7. Snowdrop

    Snowdrop Rebel without a biscuit

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    Thanks @medfeb
    Your suggestion worked. I have access. :)
     
  8. jadam914

    jadam914 Foggy member

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    Palmyra, Pa, USA
    I'm 20 pages in and I have to say so far it is well written and informative.

    I wonder if clinicians got copies how much influence would it have?
     
  9. Dolphin

    Dolphin Senior Member

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    http://solvecfs.org/%E2%80%9CThirty+Years+of+Disdain%E2%80%9D+Tells+History+of+ME

     
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  10. medfeb

    medfeb Senior Member

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    MEMum, Johannawj, mango and 6 others like this.
  11. mango

    mango Senior Member

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    MEMum likes this.
  12. moosie

    moosie

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    Last edited: Apr 22, 2017
    MEMum and Jennifer J like this.
  13. medfeb

    medfeb Senior Member

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    OhShoot, Jennifer J, moosie and 2 others like this.

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