Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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The Undetectable Infection

Discussion in 'General ME/CFS Discussion' started by Elph68, Nov 30, 2013.

  1. knackers323

    knackers323 Senior Member

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    @Elph68 what are the supps you stay on mate?
     
  2. dom_hend123

    dom_hend123

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    Elphh68, would you be open to discussing your prostatitis experience in China over some online medium (email, skype). I believe my CP is connected to my CF, but no one in states can diagnose a bacteria.
     
  3. dom_hend123

    dom_hend123

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    For starters I will post some questions here:
    1) Were they able to get rid of your Ureaplasma infection? I know these bacteria can live within our cells, making them hard to cure when in latent state. You stated your urethritis returned after China, but in later posts stated a Urologist said your prostate was perfect. Was China effective?
    2) Any side effects?
    3) Which doctor performed your injections?
     
  4. Elph68

    Elph68 Senior Member

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    Hi @dom_hend123 sorry for the delay, but I sure would ..... pm me and we can sort out how to catch up .....
     
  5. Elph68

    Elph68 Senior Member

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    Maybe we need to start another post on this specifically ..... but I will state that the cause of your CP is probably the cause of your CFS ..... your immune system is fighting a bacteria that it can’t see, nor can it beat ...... CP is more like an allergy than an infection ..... hence the inability of pathologists to determine its source ..... which I believe is the same for CFS .....
     
  6. roonie

    roonie

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    i wonder if its nothing more than bacteria migrating up into the small intestine where no bacteria is supposed to be. The entry from the large intestine (colon) up to the small intestine would be stopped by the eliocecal valve which i know for sure , mine is not working. Dr. Sarah Myhill says in one of her youtube videos, that vit. c will kill any bacteria in the small intestine. When i take vit c. my flu like symptoms get worse.
     
  7. andyguitar

    andyguitar Senior Member

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    Well it might be an idea not to take it.
     
  8. dom_hend123

    dom_hend123

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    @Elph68 , I can not for the life of me find how to start a conversation with you. Would you be able to PM me and we can start from there?

    Thanks
     
  9. Wayne

    Wayne Senior Member

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    That sounds reasonable. But on the other hand, it might be an equally valid idea to take even more Vit. C. If a certain amount of Vit. C causes flu-like symptoms, then maybe it's killing bacteria. Which makes me think that larger doses might just get the upper hand over the intestinal bacteria.​
     
    ljimbo423 likes this.
  10. roonie

    roonie

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    here is something to wrap our heads around...gulf war illness...fibro...cfs....to me it seems all have the same symptoms....symptoms are very different for every person....i find it intrigueing that the gulf war illness soilders got a bunch of vaccines while in the gulf or just before. Then...like all of us , they had a trigger (oil wells burning, stress) that sent their immune system into over ride. To me , its all the same illness....im starting to point my finger at vaccines. Hell...ive had early symptoms since childhood...i could not figure out why i just stared at the chalkboard in grade 9 and could not grasp what they were teaching me...i failed and dropped out. ...then many yrs. later as things were getting worse inside my body, and pleading with docs to help me, i had a chemical overexposure that finished me off or shall i say started the real war in my body. Why is it that "they" will not do studies on vaccinated people vs non vaccinated people to see if any of the non vaccinated people have this illness.
     
    MeSci likes this.
  11. dom_hend123

    dom_hend123

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    @Elph68, I dont have ability to start a convo. Please send me a PM and we can start. Or you can reach me at dom_hendricks at yahoo dot com
     
    Last edited by a moderator: Feb 13, 2018
  12. Elph68

    Elph68 Senior Member

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    Hey @roonie here is an article written by one of the researchers/developers of supplements that I take here in Australia:

    https://gp2u.com.au/static/documents/Food-intolerance-and-allergy.pdf

    It refers to the HLA DQ2/8 gene and how it is dormant in most people and is ‘turned on’ by external stress/infection/vaccine resulting in food intolerances and immune system hypersensitivity/dysfunction ..... not sure how scientifically correct it is, an interesting theory though ...... and could explain a subgroup of CFS sufferers.

    I believe a similar condition happens with polysaccharides ...... particularly Staphlyococcus PIA ...... the theory put forward in this thread and it is undetectable by current laboratory practices .......

    Vaccines by design activate the immune system ..... but so does an infection .......
     
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  13. Wayne

    Wayne Senior Member

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    I'm convinced vaccinations are big health factors, not only for people with ME/CFS, but the population in general. I went to a public discussion on vaccinations here in a progressive city that has lower vaccination rates than normal. There were two separate day care center workers who described how easy it is to spot the big differences between unvaccinated children and those who received normal vaccinations. In short, the unvaccinated children were calmer, behaved better, were more patient, had greater focus, etc.

    Why don't they do studies? That's a simple one... they absolutely do not want to know about any kind of potential adverse effects. And the reason they don't want to know is equally simple: $$$
     
    Last edited: Feb 24, 2018
    Iquitos, Violeta, pattismith and 2 others like this.
  14. roonie

    roonie

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    they have to be hiding something all these yrs. ...seems when vaccinations are brought up they dodge it anyway they can. All these made up names for this...chronic fatigue syndrome..really ! what a joke...then yrs. earlier...yuppie flu....gulf war illness. Why do they keep changing the name of this...for reasons we finally understand....to fool the next generation so the new ill people that are so devistated have no idea that this has been going on and on and on for many decades. The war vets that have " Gulf War Illness"...have yet to have ANY answers to this day!! Yup Wayne...all in the name of $$$$$$$$$$$
     
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  15. andyguitar

    andyguitar Senior Member

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    A while back I came across some research from the mid 60s. Medical researchers were using animals for studying anapalaptic shock. To do this they had to induce it. They used the old type of whooping cough vaccine to provoke the reaction. This may be significant. Maybe not. I doubt that the cause of GWS will ever be found as the troops were exposed to many different possible causes. Anti malaria drugs, pesticides,vaccines and so on.
     
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  16. JES

    JES Senior Member

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    Well you said it yourself in your post. CFS has existed for a long time and seems to be triggered by things like war, which has nothing to do with vaccinations.

    If we look at the global vaccination rate, there was a big increase during the 1980's from about 20% of world population being vaccinated to around 70% in 1990. But meanwhile we have reports of CFS epidemics from as early as 1930, and in fact during the last three decades we have almost no reported epidemics. So based on this data alone it looks like there isn't any correlation with vaccination rate and incidence of CFS.

    [​IMG]
     
    Elph68 likes this.
  17. roonie

    roonie

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    well...these people got cfs from hpv vaccine shortly after being administered. His english isnt very good but his treatment seems to have helped a lot...lol. I recall my immunologist saying that "they" knew this had something to do with the head region...that was many many yrs ago. Dr. John Gerrard was a leader on many fronts. One of the greatest docs ive ever met and right in my own city...how fortunate i was to be his patient.I recall even as a child i would go to the swimming pool and the chlorine would really aggrivate that region of my head...i honestly think ive had this all my life and thats why i think childhood vaccines may be to blame. Many of us have had early symptoms well before a chemical exposure tipped us over the edge. There is another subset of cfc ers that did not have long lingering effects before their "trigger". The lesson to be learned here might be to never inject anything into the human body that is foreign
     
    Last edited: Feb 15, 2018
    Sidny likes this.
  18. Violeta

    Violeta Senior Member

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    @Elph88, can you tell me about how it is going with taking the Biohawk ginger enzyme product? I have severe food sensitivity issues and viruses.

    Thank you
     
  19. lorazapora

    lorazapora

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    @Elph68 thank you for sharing all your knowledge on here. How is your health now? Hope you are fully recovered?

    I recently came across this thread and am very impressed with your research and determination. It’s scary how little knowledge mainstream doctors seem to have on these matters.

    My health journey is still a puzzle and I certainly believe I am struggling with pathogenic bacterial infections as I have had recurring UTI problems (which were excruciating) over the last 8 years that never showed up anything on the doctor’s very basic urine tests and never responded to the typical prescribed antibiotics. In the past year or so this seems to have developed into a constant pain in the urethra and bladder and I have developed IBS now as well.

    Since going on my own intense investigation similar to yours I have since discovered that I do have Ureaplasma (which is hopefully gone now but have to wait 3 weeks now after my treatment to check) and I also found that I have 3 failed root canal treatment infections, which my new very brilliant holistic dentist informed me of. The mainstream dentists never informed me about this problem which I must have had for a good few years. It seems that root canal treatments are very detrimental to health because they actually harbour infection (because not all of the small branches are filled, only the larger roots and research has shown it to be impossible to completely sterilise a root canal) and so they can leak pathogenic bacteria into the surrounding tissue to pick up a free ride to any location in the body - we just aren’t aware of any of this because obviously the nerve has been killed in the root canal so we don’t feel any pain.

    I’ve had two of my root canals extracted so far and am just waiting on the third one which looks to have a large infection in the jaw under it. I’ve also developed terrible brain fog, dizziness and chest pains as well as the worsening pelvic, bladder, urethra, abdominal pains and bloating.

    I’m hopeful that the specialist physician I’m seeing on Monday can test me properly finally to see if there are any pathogenic infections causing all this as the two treatments for Ureaplasma (doxy and azithromycin) havn’t seemed to ease my symptoms at all, neither has the Clindamycin from the the dentist. It is just so frustrating & disappointing that all the specialists I’ve seen so far don’t even give a moment of thought to the idea of an infection once their very basic tests don’t show up with anything.
     
    Last edited by a moderator: May 12, 2018
  20. Elph68

    Elph68 Senior Member

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    Hi @lorazapora, thanks for taking the time to trudge through this thread. Personally, I am pretty good, I am now trying to undo some of the damage that this has caused me.

    I have just had similar conversations with my dentist about root canal treatment and he also stated the ‘alternatives’ practitioners believe extraction is the only way .... personally, I agree with your statements and they are a source of bacterial invasion. However, there is a distinct possibility that these are not the underlying cause of your bigger problem but they may well be contributing to it.

    There is a very simple reason why they can’t find any pathogen causing your IC is because technically, there is none ..... as a result of the research that I have conducted through this thread, I have concluded that Coagulese Negative Staphlyococcus species, particularly Staphlyococcus Eperdidimis are the biggest cause of this condition. Staphlyococcus Eperdidimis is also the most populous bacteria on our body ...... it is considered normal flora of the vagina, skin, mouth, throat and eyes, but is uncommon in the gut.

    The biggest cause of medical catheter infection is Staphlyococcus Eperdidimis. How does it happen, basically as the catheter is inserted into the urethra, some of these bacteria stick to the catheter and are pushed into the bladder ..... they are very slow growing but eventually cause inflammation in the bladder ..... getting a positive result is still difficult because they stick to the bladder wall like tartar does to teeth, so they aren’t swimming around in urine like other infections do .....

    What makes them stick .... they eat sugar and convert it to slime .... it is this slime that is absorbed into the blood stream and hardens around the bacteria just like tartar on teeth, and it is this slime that causes the immune system to over react ..... I believe this slime that is absorbed collects in blood filters like the thyroid, pancreas, kidneys etc. and causes calcification ..... but this is another story.

    During a female cycle, the cervix starts pumping out sugar 8 to 10 days before the period starts, this is when these bacteria start producing bucketloads of slime, which can remove the resident good bacteria and in severe cases cause vaginitis. The slime contains a polysaccharide intercellular adhesion (PIA) and this what is causing the damage.

    In your case, you have used doxycycline and azithromycin and clindamycin .... all of these are pretty much ineffective on Staphlyococcus species but can disrupt the regular flora .... the staph keeps growing, the good guys are being killed off ..... so Staphlyococcus colony takes over ..... but according to the labs, it is still normal flora .....

    There are some things that can probably still be done ....

    1. Choice of antibiotics.... keflex may be a viable option ..... do not use penicillins, doxycycline, fluroquinolines or macrolides such as azithromycin And definitely not clindamycin...... clindamycin unlocks genetic material in staph that leads to MRSA .....

    2. Talk to your doctor about cutting off the sugar source in the vagina ...... manipulating the contraceptive pill can stop periods for a time .... I would consider this while taking treatment ...

    3. No unprotected sex, semen is full of sugar and dislodges the good flora while feeding the staph .... it can also carry staph past the cervix into the womb ..... this causes preterm delivery when pregnant. PIA damages the membranes protecting the foetus.

    4. Using antiseptic surgical scrub around the vagina and anus to try and remove the PIA producing strains. Not all these bacteria produce PIA and you could take samples from different sites around your body and find different strains producing different levels of PIA .... the issue is when PIA producing strains have access to sugar .....

    5. Using accepted practices for MRSA vagina decolonisation is a good place to start your research .... betadine pessiaries are an option ...... but they aren’t widely used anymore in the West ....

    6. Betadine mouth wash and xylitol in eyes and up the nose.

    And with all this bacteria killing ..... multiple probiotics including kefir, sauerkraut and kombucha ....

    I hope that helps.

    Cheers.
     

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