Two politicians, Finn Bengtsson and Adam Amir, recently submitted a motion/proposal to the Riksdag (the Swedish Parliament). The proposal is titled "Recognition and support for patients affected by ME/CFS and IBS". The Riksdag is supporting the proposal for targeted research into these diagnoses, and will be putting the proposal forward to the Regering (the government). The proposal is available in Swedish here: http://www.riksdagen.se/sv/dokument-lagar/dokument/motion/_H402282 Lots of it is great, for example (sloppy translation): They write about scepticism among care providers, about the reluctance to accept new findings ("sometimes even prejudiced against the medical knowledge development, which risks transmitting a negative attitude to political decisionmakers and the public"), older terms such as pain-burn-ache hags (an abusive term for fibromyalgia), that this group of patients is neglected and still looked down upon by health care professionals and the public and many politicians, substantially lowered quality of life, that there currently are no safe and effective treatments and no rehabilitation opportunities. So far so good. Then there are some parts I'm not so sure of... for example, they claim that 60-70% of those who meet the diagnostic critiera for fibromyalgia also meet the ME/CFS criteria; and that 60% of those meeting both FM and ME/CFS criteria have IBS. They write: "This has given rise to the question whether the individual illnesses are to be considered to have very high comorbidity, or if it's actually the same illness that can express slightly different symptoms from case to case." And then there's this: "[for which] the collective term dysregulation syndrome spectrum alternatively central sensitivity syndromes has been proposed." Next, they propose that Regeringen (the government) should fund/establish a national knowledge centre. They continue by discussing whether it's a good idea for politicians and/or authorities to support specific research, or if research should always be completely independent. Finally, they propose: To be honest, I'm confused. My interpretation is that they genuinely want more and better biomedical research into ME/CFS (and FM and IBS). I don't know anything about Amir, but Bengtsson has been very helpful on several occasions over the years, strong on the biomedical view, which almost makes me willing to give him a slight benefit of the doubt... almost. Perhaps he has completely misunderstood what CSS and DSS actually are? I don't know, but I'm having a very bad feeling about this... Needless to say, I consider concepts such as CSS and DSS completely unacceptable and hugely problematic... We're doing our very best trying to find out more about more details, will ask Bengtsson to elaborate and explain... Those of you who are able to read and decipher the proposal, please do share your thoughts on it! I'd love to know how you interpret it.