International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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"The SEID Criteria: How do you like your porridge?" (March 14) by Tina Tidmore

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Dolphin, Mar 14, 2015.

  1. Dolphin

    Dolphin Senior Member

  2. Ember

    Ember Senior Member

    Tina writes, “The IoM committee took the approach of trying to find the disease features that are different in this disease from others. That is why they did not include myalgia or other pain.” By that standard, why did the Committee include other core symptoms: fatigue and impairment, unrefreshing sleep, cognitive impairment and orthostatic intolerance?

    Tina agrees that neurocognitive impairment and autonomic dysfunction should be optional:
    The problems that Tina describes remain, however, when either neurocognitive impairment or autonomic dysfunction is required.

    Finally, Tina argues that PEM should be renamed:
    Tina's criticism could be made of SEID itself: “It's more vague and can include just not having motivation, being slow. It's not specific enough to describe what we have which is like we're sick with some illness, an infection.... It's misleading and confusing.”
    Wildcat likes this.

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