Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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The 'secret' (= DWP and MRC) files at Kew….

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Mar 2, 2015.

  1. charles shepherd

    charles shepherd Senior Member

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  2. eafw

    eafw Senior Member

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    Thanks for that link Charles. Vaguely knew about the Kew archives, but not that sucessful efforts had been made to release the info.

    Looks like an interesting blog too.
     
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  3. Sidereal

    Sidereal Senior Member

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    Just reading through these. The section on retroviruses and Behan's comments on enteroviruses in muscle are redacted until 2071 when all of us will be dead.
     
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  4. A.B.

    A.B. Senior Member

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    This is of course only to protect the patients that are so vulnerable to suggestion that merely hearing about viruses instantly causes life-long symptoms :rolleyes:
     
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  5. CantThink

    CantThink Senior Member

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    Very interesting!
     
  6. CantThink

    CantThink Senior Member

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    I might still be alive if I live until 91! :lol::confused:
     
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  7. worldbackwards

    worldbackwards A unique snowflake

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    I'l be 93. I intend to live that long out of spite.
     
  8. A.B.

    A.B. Senior Member

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    This part about Behan wasn't redacted:
    The referenced work is this: http://www.ncbi.nlm.nih.gov/pubmed/1794085
     
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  9. Sidereal

    Sidereal Senior Member

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    From the long Behan paper (page 129):

     
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  10. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    And some of the early Polio vaccine work was done in the Belgian Congo
    did anyone ever question WHY there?
    Because it was one of the world's most horrible regimes on Earth, folk were treated like animals
    So risk of unethical or worse behaviour in research there...well...ME/CFS...HIV...hm?
     
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  11. halcyon

    halcyon Senior Member

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    Sean likes this.
  12. Sidereal

    Sidereal Senior Member

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    halcyon and snowathlete like this.
  13. Esther12

    Esther12 Senior Member

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    I wonder what was redacted from the section at the top of page 7 on CBT? S40 is personal information.
     
  14. wastwater

    wastwater Senior Member

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    I saw a mention of ADEM and TM these are very much hit and run style immune encephalitis TM having a more muscular style presentation.
     
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