Volunteer opportunity: Organizing Phoenix Rising articles
This section contains all the articles that have been published by Phoenix Rising over the years. As you will see if you browse here, some of the articles are outdated--either the research has been superseded or retracted or the article features an event or campaign that is now in...
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The Real ME: A Stock Photography Resource for the Media

Discussion in 'Phoenix Rising Articles' started by Sasha, Mar 23, 2016.

  1. Maggie21

    Maggie21

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    Perhaps the answer is if a particular patient is being talked about in the article hopefully they will be prepared to provide a photo of themselves that way the picture will match the description. If the patient is not then don't put a photo in at all, it isn't necessary after all. If they must put something in put in some sort of diagram describing symptoms or a graph with relevant figures or something of that sort.

    If the article is general and doesn't mention specific patients then put in a few pictures representing varying degrees of severity, with real or imaginary patients, and/or some aforementioned relevant diagrams.
     
  2. michaeljoseph

    michaeljoseph

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    There is nothing wrong with the photo of the boy. His face is on the top right of rules of thirds composition grid and the wheelchair is a leading line to his face. His toys give it a nice touch and the background is slightly blurred to accentuate him .He is back lit or side lit too . in all he looks very natural
     
  3. KitCat

    KitCat be yourself. everyone else is already taken.

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    brilliant! thanks for doing this.
     
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  4. Leopardtail

    Leopardtail Senior Member

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    I had the same thought Sasha. If people have something identifiably different, we look disingenuous.
     
  5. Leopardtail

    Leopardtail Senior Member

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    As long as we are using a genuine ME patient who looks like death warmed up - I don't see the problem. Cancer campaigns didn't use people looking amazing - it would have been counter-productive. If ypu want to raise funds, which is the point of the excercise, then we need to generaye real sympathy for the disease.
     
  6. Sasha

    Sasha Fine, thank you

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    Again, we've got to bear in mind that the media tend to only use genuine patients in their photos when the article is about that particular patient. Otherwise, they use someone who is clearly a model.

    But if we're trying to raise funds, we're not bound by that principle. The PWME who is petitioning (25k signatures now, I think) for more NIH funding has a picture of herself lying in bed.
     
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  7. Leopardtail

    Leopardtail Senior Member

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    I am not crystal clear what you are trying to say Sasha.
     
  8. Valentijn

    Valentijn Senior Member

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    Journalists and media outlets don't want photos of real patients, unless the story is about that particular patient. They want generic stock photos, not photos of specific patients.

    So having ME patients pose for photos and send them in won't help with the problem of the media using crappy stock photos. They simply won't use the ME patient photos, and will continue using stock photos regardless.

    Thus the solution is to have a compiled list of appropriate existing stock photos, getting ME/CFS added to those photos as labels so they turn up when searching for ME/CFS, and possibly creating and adding additional professional photos of non-patients (models) to use for ME/CFS.
     
    Last edited: May 5, 2016
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  9. Sasha

    Sasha Fine, thank you

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    Not sure if you've read the article or are coming to the discussion late, but my article is about when the media use personal photos and when they want generic ones - such that PWME trying to supply the media with personal ones in the hope that they'll be used for general stories won't be productive.
     
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  10. PhoenixDown

    PhoenixDown Senior Member

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    Just come across this old BBC article where they've use a reasonable picture to illustrate ME.

    http://news.bbc.co.uk/1/hi/health/183239.stm

    _183239_sleep_300.jpg

    May be the media took ME more seriously in the 90's or may be they didn't have the stock photography they have today. Notice how they open the article by using myalgic encephalomyelitis (ME) not CFS.
     
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  11. panckage

    panckage Senior Member

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    @PhoenixDown that picture looks to me like someone about to sneeze more than anything :rofl:
     
  12. slayadragon

    slayadragon Senior Member

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    twitpic.com/photos/SlayaDragon
    That is a good collection of photographs that you put together, Sasha.
     
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  13. Bob

    Bob

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    Re the official Phoenix Rising photo resource page...
    http://phoenixrising.me/stock-photography

    It's been noticed on Twitter that all the links to the photos have been broken. It's not a bug on Phoenix Rising but I assume that istock have changed their software.

    It looks like the links are retrievable with a bit of googling.
     
    Last edited: Sep 4, 2016
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  14. Bob

    Bob

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    Last edited: Sep 4, 2016
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  15. Lucibee

    Lucibee

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    @Sasha Hope you don't mind, but I've downloaded and edited the Stockphoto list with updated/corrected links, if that's of use. Shall I upload it here or send to you direct?
     
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  16. Sasha

    Sasha Fine, thank you

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    Hi Lucibee - thanks for doing that - unfortunately unable to look at the mo.

    I think someone did some edits on the page after me - @Mark? I don't know if anyone with edit access has the capacity to take this on?
     
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  17. simeyss

    simeyss

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    Thanks so much for doing this, @Lucibee!
     
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  18. Mark

    Mark Former CEO

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    As Sasha has suggested, we don't really have any volunteers to do this right now, apart from those of us who have to focus the limited time we have available for Phoenix Rising work on more fundamental matters. I think the best thing would be if you could post your updates here, then I'll keep your post in my bookmarks and if any volunteers appear I'll ask them to do the appropriate edits. Anyone who feels capable of editing a Wordpress page could do it, just in case anybody reading is interested.
     
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  19. Esther12

    Esther12 Senior Member

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    Sounds like PR admin are extra stretched at the moment - thanks to everyone chipping in.
     
  20. Bob

    Bob

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    I can sort out the editing, slowly, if the links are posted here.
     
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