August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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"The most extreme consequence - trauma and premature death" (October 25)

Discussion in 'General ME/CFS Discussion' started by Tom Kindlon, Oct 27, 2016.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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    "The most extreme consequence - trauma and premature death" (on ME/CFS) (October 25)

    http://livetsbilder.blogspot.ie/2016/10/the-most-extreme-consequence-trauma-and.html





     
  2. Mary

    Mary Moderator

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    Wow ------ amazing blog -----

    Someone did a post recently about how persons with ME/CFS are gaslighted by the medical profession - we are dismissed, our reality questioned, etc. by the very people who are supposed to be helping.

    I've been wondering lately how much worse this awful illness is because of how we are treated, its invisibility, its almost complete lack of validation by the medical profession at large and family and friends. Not only is it one of the most debilitating illnesses on the planet, but patients are almost completely on their own in terms of both treatment and dealing emotionally with this illness. It would be hard to try to come up with a worse scenario. The blog discusses this all very eloquently, well worth a read.
     
    Last edited: Oct 27, 2016
  3. Countrygirl

    Countrygirl Senior Member

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    http://livetsbilder.blogspot.co.uk/2016/10/the-most-extreme-consequence-trauma-and.html

     
    Mary, Dolphin, actup and 10 others like this.
  4. taniaaust1

    taniaaust1 Senior Member

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    thanks. I'm certain I have got PTSD from how Ive been treated around this illness not just due to doctors but the support services can be even worst.
     
    Mary, Jan, Countrygirl and 1 other person like this.
  5. anciendaze

    anciendaze Senior Member

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    The same observation of iatrogenic PTSD was voiced at a conference on Periodic Paralysis last year. All the patients in that organization have diagnoses based on objective signs and laboratory results, so it should be easy to rule out a "conversion disorder" (formerly called "hysterical conversion disorder" in the bad old days when only women were blamed). A substantial number of doctors haven't learned.
     
    Sean, taniaaust1, Woolie and 2 others like this.

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