Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
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The Inclusion Project for Chronic Illness

Discussion in 'Advocacy Projects' started by Snowdrop, Jul 5, 2017.

  1. Snowdrop

    Snowdrop Rebel without a biscuit

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  2. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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  3. SamanthaJ

    SamanthaJ Senior Member

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    Last edited: Jul 6, 2017
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  4. Jenny TipsforME

    Jenny TipsforME Senior Member

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    Yes I am. It is very early in the project. We are building a movement to give people with (energy limiting) chronic illness disability a voice. It is a research project, but it is partly research about how to grow this type of movement.

    Depending on what participants want to do, we'll likely cover concerns such as MUS which cut across quite a few conditions and are social/political. It isn't testing treatments (not our area).

    We're seeking to answer these questions:

    "How does society make life harder for people with chronic illness than it need be?

    and

    What are our priorities for changing the way society responds to chronic illness?

    The Chronic Illness Inclusion Project runs until December 2019 and is part of the DRILL programme, funded by Big Lottery Fund. Read our full project outline."
     
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  5. Jenny TipsforME

    Jenny TipsforME Senior Member

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    This is the link to subscribe to our email list and get information about participating
     
  6. Snow Leopard

    Snow Leopard Hibernating

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    Is this just for people in the UK or?
     
  7. AndyPR

    AndyPR Senior Member

    Latest email from the Project
    A click on the link in the quote above will take you to the blog, or the main page for the website is http://inclusionproject.org.uk/
     
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  8. AndyPR

    AndyPR Senior Member

    Latest blog update from @Jenny TipsforME
    https://tipsforme.wordpress.com/2017/07/29/inclusionproject-nice/
     
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  9. Jenny TipsforME

    Jenny TipsforME Senior Member

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  10. Jenny TipsforME

    Jenny TipsforME Senior Member

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