I could sit here and write about the notorious
PACE trial; a pseudoscientific study into ME so warped that to this day, despite overwhelming evidence showing it’s deeply flawed and harmful, its authors still arrogantly and dogmatically stand by its results. But you can read what I had to say on that,
here.
Maybe I should tell you about some of the harrowing stories I heard on Saturday. Like the parents who came to London, leaving their seriously ill daughter in hospital. A daughter, living with ME, who due to a complication of the disease has been in hospital for nearly three weeks. If she wasn’t there, she probably would have died.
I could complain about the lack of
support from most MPs, judging by this Twitter
search. And I could call out other disabled people’s organisations, some of which I vocally promote at length, which completely ignored Saturday’s action. But I’ll leave that for another time; like I’ll also leave out the
medical misogyny that females with ME experience.
Or I could moan about the media coverage of the Millions Missing protest in London, which while to be welcomed was hardly groundbreaking stuff. It probably has a lot to do with organisations like the Science and Media Centre (SMC); a charity that
promotes working between the media and the medical and scientific communities. As I
reported in March, it has been actively trying to discredit anyone who questions the findings of the PACE trial; again due to alleged vested interests.
