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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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The best doctor ever

paolo

Senior Member
Messages
198
Location
Italy
Hallo,

who is the best doctor for CFS/ME in the world?

Has anyone gone to Nancy Klimas's institute?
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
Hallo,

who is the best doctor for CFS/ME in the world?

Has anyone gone to Nancy Klimas's institute?


Fraid no one can answer that! People have different experiences with the same doctors. If you do a lot of reading here you'll get to see how different doctors work.

Many here have gone to see Dr. Klimas or Dr. Rey--the one who is actually seeing most of the patients now.

Do a google search here (look at the bottom of the forums menu) and you will see many threads about experiences with Drs. Klimas/Rey.

Best,
Sushi
 

paolo

Senior Member
Messages
198
Location
Italy
Thanks.

I'd like also to ask if are there documented improvements with some specific treatment. I know, this is the million dollar question.

I live in Italy and here we have very few doctors who know this illness. I'm trying GcMAF and many supplements. I've seen this forum is really big and i've difficoluties in reading all these posts. But I will try.

Now I'm planning to go abroad to see some doctors, and I wonder if it is worth going to USA and see Nancy Klimas or some other specialist.

Thanks some much for any possible suggestion.
 

ukxmrv

Senior Member
Messages
4,413
Location
London
You may want to consider waiting lists of doctors in the USA. Some have waiting times of months or longer I think.

Something to consider a little closer to home could be Dr Enlander when he comes to Europe (he visits London, Ireland and other places) or Prog Kenny Meirleir in Belgium.
 

amaru7

Senior Member
Messages
252
Dr. Jacob Teitelbaum is one of the good, Sarah Myhill from UK also great. The best doctor is always yourself though
 

SOC

Senior Member
Messages
7,849
Thanks.

I'd like also to ask if are there documented improvements with some specific treatment. I know, this is the million dollar question.

I live in Italy and here we have very few doctors who know this illness. I'm trying GcMAF and many supplements. I've seen this forum is really big and i've difficoluties in reading all these posts. But I will try.

Now I'm planning to go abroad to see some doctors, and I wonder if it is worth going to USA and see Nancy Klimas or some other specialist.

Thanks some much for any possible suggestion.

Since you're in Italy, I suggest you consider trying to see Dr K DeMeirleir in Brussels, Belgium. He's a topnotch ME/CFS doctor and closer to you than the US specialists. You can learn more about him by watching his web seminars given in this thread here at PR.

Most of the US doctors have very long waiting lists -- 6 months to 2 years or more -- and are very expensive by European standards, so make sure you take that into consideration if you decide to come to the US for treatment.

I believe Dr Klimas is not taking new patients right now. Her associate, Dr Rey, might be but she is extremely busy as well. They are putting together the Neuro-Immune Institute at NOVA Southeastern University and that's taking a lot of their time and energy.

PS I do go to the Neuro-Immune Institute to see Dr Rey. She is an excellent doc, imo, and has helped me improve my functionality significantly.