International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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The Abundant Energy Summit

Discussion in 'Upcoming ME/CFS Events' started by MeSci, Aug 26, 2015.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Absolutely. The reason most of us are as ill as we are is largely due to medical incompetence, lack of available, effective treatment, lack of belief and support.
     
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  2. snowathlete

    snowathlete

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    No time to read all 6 pages, but the promoters have been asking people in the ME/CFS community to endorse it. I think it looks like BS. I can't imagine why Myhill and Jason are involved in this.
     
    Last edited: Aug 30, 2015
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  3. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Newton's not, @snowathlete - it's Jason and Myhill.
     
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  4. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    I don't think pushing oneself when one has a virus is likely to 'damage' the immune system. The symptoms of the viral infection might be amplified I guess but I am not aware of evidence that it would alter long term immunity to the virus or dysregulation. My thought was more that if you were pushing yourself, or whatever, and a virus came along the response might be more likely to set the hypothalamus into a regulatory loop expressed through HPA axis and autonomic system. But I am wary of theories that involve 'pushing' or 'stress'. These are the stock in trade of the psychotherapists who think they know how to solve things. I would prefer to stick to gathering objective data and finding correlations and trying to work out what might be happening at a physical biological level.
     
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  5. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    I'd like us to be doing both, and more!

    It will be an awfully long time before objective data are translated into clinical practice, and I have lost 20 years of my life to this already. I may only have about 20 years left. I hope to have more, but...

    So I want to find out as much as I can about this accursed illness in order to try to figure out what might help me and others who are already ill, and all those at risk of getting ill in the future.

    Thanks for the ideas anyway. I'm interested in all credible ideas. There is so much interplay between the different systems, and so many systems seem to be affected, it is hard to untangle the threads to try to find the start.
     
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  6. snowathlete

    snowathlete

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    Thanks for correcting! I shall go back and edit my previous post in case anyone gets the wrong information.
     
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  7. Aurator

    Aurator Senior Member

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    That's reassuring since it exonerates me to some extent from the suggestion (or is it an accusation?) I often hear that my illness is a consequence of overdoing things (I'm a former amateur athlete, who trained and raced quite intensively).

    Somewhat incongruously, the same people who make this suggestion occasionally also say that there may have been something already wrong with me that predisposed me not to survive the training and racing workload unscathed, and that is why I got the illness. So I was doubly stupid, it seems, first for overdoing things, and secondly for not realising that my limits were naturally lower than those of normal people and not training within those abnormally low limits. The corollary of this second point is that besides being stupid I was weak and inferior as a physical specimen.

    Just out of interest does anyone know of any other non-psychiatric illness in which there is a proven link between "pushing/stress" and developing the illness? Perhaps there is an obvious example I've missed.
     
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  8. Gingergrrl

    Gingergrrl Senior Member

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    Have not read this whole thread but have two additional points re: healthcare workers of which I was one for 16 yrs (social worker in hospital).

    One- many hospitals and their outpatient programs were housed in old water damaged buildings with asbestos, mold and chemicals and workers were exposed to all kinds of things that made them ill as a trigger or component of their illness. I worked in a bldg for 10+ yrs that had been condemned by the health dept but no one cared.

    Two- even if you were not a perfectionist (which I am not) you often worked in programs that were chronically short staffed and you felt an extreme dedication and loyalty to your patients so even if you needed time off for medical appts etc you knew your patients would be unattended to and this over rode taking care of yourself.

    If you needed time off for illness this was frowned upon by supervisors and I worked full time an entire year with mild to moderate CFS, before my body and autonomic system failed, out of dedication to my job and my patients. Had I taken medical leave earlier it may have made a difference (or not, I will never know.)
     
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  9. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    An internet search found this interesting article on the subject of stress and illness.
     
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  10. redaxe

    redaxe Senior Member

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    If there was a cohort of people at risk of developing such an illness the most obvious example I could think of would be conscripted draftees at the army bootcamps. You take civilians, many still in their teens and throw them into a level of physical training and psychological stress that most have never experienced before.
    If there was any record of medical discharges during the Vietnam conscription era or from countries that still have the draft that would be one place to look.
     
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  11. Hutan

    Hutan Senior Member

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    From @MeSci 's recent post on a study on sleep and susceptibility to colds.:
    That is actually quite a plausible way in which physical and emotional stress might affect a person's immune system. You are up all night working to meet a deadline or you are up all night grieving or worrying about personal circumstances. The lack of sleep knocks your immune system and so you are vulnerable to an illness.
     
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  12. mermaid

    mermaid Senior Member

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    Funny you should have quoted this study as I had just read this study on the BBC health site this morning that links poor sleep with getting more colds....(I guess that is a form of stress on the body) and it's the same person involved in this study!
    http://www.journalsleep.org/ViewAbstract.aspx?pid=30153

    Edit note: Cross posted with Hutan's!
     
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  13. mango

    mango Senior Member

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    Here's Lenny Jason's talk:
     
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  14. waiting

    waiting Senior Member

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    Thanks for posting this, @mango.

    Dr. Jason makes a powerful call to advocacy action in his talk -- well worth listening to as he discusses the stigma effect.
     
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