• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Tetrahydrobiopterin/BH4

rwac

Senior Member
Messages
172
I'm basically on freddd's protocol for methylation.
I take Thorne B-12 complex+dibencozide+methylcobalamin+methylfolate.

I am heterozygous for both MTHFR polymorphisms (C677T and A1298C), so I may have additional need for BH4 as well.

Has anyone here tried BH4 at all ?
Did it help at all ? What symptoms did it help with ?

Thanks!
 
Messages
3
Location
Indianapolis
The same here I am also heterozygous for both MTHFR polymorphisms (C677T and A1298C)!
No I have not tried BH4 I am hoping to be tested and have the synthetic form perscribed if my blood test indicate my BH4 is low. I am hopeful that this may be the solution.

So far my physicians have not paid much attention to my requests. I am preparing a presentation that I plan to email to them. Having it in writing may help.