Nielk
Senior Member
- Messages
- 6,970
Tell Us Your Story: Lyme and MCS
Lyme:
The protein study that found biological distinction between ME/CFS patients and those who had Lyme disease but continued to show symptoms after treatment has led to
news media attention. PANDORA has been asked to participate in a radio program that will focus on Lyme prevention and the controversies with diagnosing Lyme disease and accessing knowledgeable treatment.
The difficulties in distinguishing between ME/CFS and Lyme disease will also be part of the discussion. If you have Lyme disease, please contact Tina Tidmore asap by phone at 205-680-6890.
MCS:
Additionally, PANDORA is updating the website with a totally new layout. In describing each of the NeuroEndocrineImmune diseases, we want to include a personal account. The PANDORA brochure already has the personal account of people with ME/CFS, fibromyalgia, MCS and chronic Lyme disease. The one missing is MCS. Please e-mail Tina Tidmore at ttidmore@pandoranet.info if you have MCS and are willing to have your story and photo included on the new website.
Marly Silverman, Founder
P.A.N.D.O.R.A. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
Lyme:
The protein study that found biological distinction between ME/CFS patients and those who had Lyme disease but continued to show symptoms after treatment has led to
news media attention. PANDORA has been asked to participate in a radio program that will focus on Lyme prevention and the controversies with diagnosing Lyme disease and accessing knowledgeable treatment.
The difficulties in distinguishing between ME/CFS and Lyme disease will also be part of the discussion. If you have Lyme disease, please contact Tina Tidmore asap by phone at 205-680-6890.
MCS:
Additionally, PANDORA is updating the website with a totally new layout. In describing each of the NeuroEndocrineImmune diseases, we want to include a personal account. The PANDORA brochure already has the personal account of people with ME/CFS, fibromyalgia, MCS and chronic Lyme disease. The one missing is MCS. Please e-mail Tina Tidmore at ttidmore@pandoranet.info if you have MCS and are willing to have your story and photo included on the new website.
Marly Silverman, Founder
P.A.N.D.O.R.A. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
