ME/CFS and the Change of Seasons: How Does This Affect You?
The advent of autumn can hit Jody Smith pretty hard. She's learned a few ways to lessen the damage every year. How do you handle the change of seasons?
Discuss the article on the Forums.

Take your cough syrup!

Discussion in 'General Treatment' started by Levi, Dec 18, 2009.

  1. Levi

    Levi Senior Member

  2. starryeyes

    starryeyes Senior Member

    Bay Area, California
    Guafenisin is in cough syrup and some people with FMS swear by the Guaf protocol that it's made their FMS much better. It didn't help others though. We're such a mystery. But I'm not surprised to hear this.
  3. Jim

    Jim Senior Member


    does anyone know how to get noscapine besides through cough syrup?

  4. MEKoan

    MEKoan Senior Member

    This noscapine research is amazing!

    For any who don't have a prostate and did not read, it is thought to have wide anti-cancer effects and may also be useful against stroke.

    Amazing stuff!

    Great find, Levi!
  5. abstractblue

    abstractblue Guest

    Sorry, but this is pretty reckless advice..
  6. bakercape

    bakercape Senior Member

    Cape Cod. Mass

    all the things I've tried over 22 years Guiafinessin has helped me the most. Has been helpful with muscle pain and fatigue. I take 2 mucinex pills daily.
  7. _Kim_

    _Kim_ Guest

    Guiafinessin helps with menstrual pain, too, starting a few days before the first day of the cycle. Found this out by accident when I was taking it for a cough and had no pain during that month's period.

    Guaifenesin as a Treatment for Primary Dysmenorrhea

    The mechanisms may be due to it's muscle relaxing properties &/or its ability to thin mucus. I've read that some women have even used it to help them conceive.

  8. Min

    Min Guest

    For anyone who is thinking of taking Guaifenesin please don't just buy cough syrup with it in. It must be a purer form such as Mucinex.

    The Guaifenesin protocol is quite demanding & all toiletries, make-up and dental products have to be checked for ingredients, and no herbs or aspirin can be ingested.
  9. abstractblue

    abstractblue Guest

    I understand being desperate, but I don't think that coming up with loose theories about what might fix XMRV (which we don't even know for a fact causes CFS at this point) is going to help anyone. Cough syrup isn't exactly good for you. If you were telling people to take lots of Vitamin C I wouldn't have a problem with it.

    I guess I would just like to see that this place doesn't turn into another one of the hundreds of websites that talk about false cures.
  10. glenp

    glenp "and this too shall pass"

    Vancouver Canada suburbs
    Cough Syrup Anyone!!!

    I sometimes have bouts of coughing bad enough to cause migraine or head throb severe enough to not be able to sleep. I rarely tell my doctor that a med helps but I have with this cough med "ratio cotridin syr Pseudoephedrine-triprolidine (ram)' he thinks its the codeine. I really feel it helps a lot, and thats unusual with most of us. I researched one of the ingredients "tripolidine" and found

    USPTO Application #20070026051 Tripolidine providing refreshedness upon awakening - looks to me like it might be suggested in sleep disorders???

    I havent seen anything else on it. It is more then the codene with this med.
    Has anyone with this prob tried it?

  11. abstractblue

    abstractblue Guest

    Levi - I understand where you're coming from. Trying new things is great, it gives us hope. I just think that this particular thing that you are suggesting is risky and premature.

    I tried Valcyte for a month once. I talked a doctor into prescribing it to me because of the reported success that Montoya had experienced with it. It made me dreadfully ill with no benefit at all. That experience has left me extremely wary of experimental treatments with potential health risks. I feel that I made a mistake. Perhaps part of me wants to see that others do not make a similarly foolish mistake.

    I think it's great that people are trying to come up with their own treatments/therapies but we should all be very careful.
  12. starcycle

    starcycle Guest

    I don't see what's wrong with merely presenting information. No one is recommending anything to anyone. I for one am glad to have every and all possibilities brought to my attention, as who knows what might eventually prove to be effective. We can all make our own decisions about what we want or don't want to try. Better to know than not know, imho.

    And that noscapine research is something that I probably wouldn't have found on my own, so I'm glad to know about it. :) I can think of a lot worse things to take than a non-addictive opium derivative that not only appears to be remarkably safe, but also is anti-cancer and anti-stroke, including some of those nasty HIV and other antiviral drugs that completely trash the liver and some of them probably the kidneys, too!

    But you're right abstractblue - we also have to be careful. But discussing things is one way to find out if it's something rational to take, what the cost/benefit might be, etc. If no one posted suggestions like that to discuss, we might actually make worse choices. imo! :)
  13. Advocate

    Advocate Senior Member

    Hi abstractblue,

    Levi is not promising a cure; he isn't selling anything; he isn't pushing a protocol.

    He is offering information; he is offering his experiences; he is making us laugh.
  14. golden

    golden Senior Member

    I read a book on this a few years ago and the doctor talked of it curing M.E.

    I wonder if it ties in with poor lympathic drainage.

    I wasn't interested in taking any drugs , even over the counter ones, as I can get bad reactions from ordinary things!

    I think it was Silicin - or something like that which has to be avoided for it to work as even a small amount blocks the Guarnesferin.

See more popular forum discussions.

Share This Page