Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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Take part in our Severe M.E. Symposium from home

Discussion in 'Upcoming ME/CFS Events' started by Action for M.E., Oct 30, 2014.

  1. justy

    justy Donate Advocate Demonstrate

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    if microglia cativated all the time - how are symptoms relapsing and remmiting.
    Prof - many diseases show relapsing remmiting - MS - poorly understood. In MS about a third of relapses associated with low level viral infections - leads to further activation.

    This is interesting as I experience this.
     
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  2. justy

    justy Donate Advocate Demonstrate

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    question about exercise -
    prof - great question. Exercise is anitinflammroty - sedentary lifelstyle is a concern - he obviously doesn't know much about severe M.E
     
  3. justy

    justy Donate Advocate Demonstrate

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    Talking about colds - for some people having a full cold is a sign of recovery

    answering my question now about exercise - he doesn't know the answer...
     
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  4. justy

    justy Donate Advocate Demonstrate

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    He isn't answering questions directly about M.E which is a shame - he says its not his area. Perhaps next time a speaker who does have an interest in M.E?
     
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  5. justy

    justy Donate Advocate Demonstrate

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    H question - how to de prime the microglia
    Prof - no idea at the moment - looking at what primes the micros in the brain first - they are exploring this to try to stop them priming in the first place - but no work on reversing the priming. Keep an eye on other diseases that contain these issues eg alzheimers, psychiatric dieaseas
     
  6. justy

    justy Donate Advocate Demonstrate

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    Low levels of moderate stress can have effects on the innate immune system in the brain (in mice models)
     
  7. justy

    justy Donate Advocate Demonstrate

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    The changes in the brain ARE physical - as physical as it gets, but it can cuase emptional symtpoms - depression anxiety etc
     
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  8. justy

    justy Donate Advocate Demonstrate

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    Sonya Chowhury up next - no my bad - parent and carer testimony and short film
     
  9. justy

    justy Donate Advocate Demonstrate

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    Sonya defining what they mean by severe M.E now.
     
  10. justy

    justy Donate Advocate Demonstrate

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    Sfter her talk I will be going onto the round table discussion - my point - we need SOME care -specifically at home. - I have none
     
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  11. Min

    Min Guest

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    She says 93% of people with severe M.E. are not in work.

    Er...what illness is she talking about? How can 7% possibly be in work. Maybe AfME have redefined the meaning of 'severe'?

    AfME say they don't know how best to support people with severe M.E.

    They best way would be to stop working with the Wessely school of psychiatry.
     
    Last edited: Nov 14, 2014
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  12. justy

    justy Donate Advocate Demonstrate

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    Synopsis of the round table discussions (by AFME):

     
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  13. justy

    justy Donate Advocate Demonstrate

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    finally worked out how to copy the agenda:

    [​IMG]
     
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  14. justy

    justy Donate Advocate Demonstrate

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    Clare McDermott talking about service provision for patients with severe M.E
     
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  15. justy

    justy Donate Advocate Demonstrate

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    talking about a research project at Southampton

    'What is the current NHS Service provision for people with Severe M.E' slide taken down, cant read the rest
     
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  16. justy

    justy Donate Advocate Demonstrate

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    Lots of talk about GET CBT and activity management being offered to severe patients - I want to ask a question about this but not sure how to put it - any ideas? She is only reporting what they found - no discussion of the relevance of any of this. Anyone have a good question?
     
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  17. justy

    justy Donate Advocate Demonstrate

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    Live chat - most patients turned off by this discussion of CBT and GET.
     
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  18. justy

    justy Donate Advocate Demonstrate

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    Clare McDermott been severely affected herself. Good question re appropriateness of CBT and GET offered on live chat but afme not asking it.
     
  19. justy

    justy Donate Advocate Demonstrate

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    Question asked - what would be appropriate treatment for PWME/severe. answer 'different people need different things' Live chat not impressed by her answer...
     
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  20. Bob

    Bob

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    Thanku for all this justy :thumbsup:
     

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