Hi everyone, This is my first post here. I've been lurking for a while so hopefully I won't make any huge blunders, but please let me know! Unfortunately my brain fog has meant trying to read longer pieces of information quite difficult for me. At this point I'm just trying to do anything that might stop the relentless deterioration I've been experiencing for the last 18 months that has left me wondering what the future holds. A little background: I am 27, unable to work for the last 6 years, living in a shared house with friends and have been physically ill for just coming up to 6 years. I was in my final year of uni so there was the usual stress, but I started to feel physically unwell and need longer and longer amounts of sleep, generally 16 but up to 20 hours a day of on and off sleep per day. I feel I can't remember all my symptoms at that point, but I know they included fatigue, GI symptoms, feeling very cold, dizziness, confusion and similar. I also had a worsening of my mental health issues (agoraphobia, anxiety and depression). During the two years that followed I struggled a lot. During this time my mum also died suddenly of cancer. Something I found particularly upsetting is that on many days I was far too exhausted to be driven by my dad to go and see her in the hospice, something I'd never experienced when I'd had 'just' mental health issues. After those two years I feel things got somewhat better. I still napped in the afternoon most days and stayed home resting five days a week, but was able to go out for a few hours a couple of times a week (eg a book club, going for tea) and I was able to cook for myself and sometimes even go out socialising in the evenings as long as I was prepared to pay for it later. I'd have crashes that would last a few days but with some minor help with friends could just about cope. At the time it felt awful but now I miss those days! This all changed 18 months ago. I'd moved into the same shared house I now live in with friends. It's the best housing situation I've had - we have shared cooking (that I now can;t always participate in) and are a generally supportive household. However, in November 2014 I caught a virus or similar of some sort. I had nausea and inability to eat properly that lasted about 2 months after and my mobility was effected. This is already getting long so I'll try to summarise what I'm dealing with: - Crashes getting closer and closer together from less and less activity - Pretty much housebound, have been a 3 minute walk from my door three times in 2016 - Using a stick some of the time indoors - General feeling of fatigue, weakness, constantly like having a cold and then during crashes, severe flu - Had to give up pretty much all cleaning/household chores - When not in a crash I can just about cook a meal for myself, go on the internet, have a bath, talk with friends (not all in the same day!) - When in a crash I feel so exhausted that I feel I wish I could rest, even when lying down in the dark and quiet - When in a crash need help from housemates to be pulled to sitting upright in bed to eat - When in a crash cannot get to the toilet properly downstairs (won't put what I've had to do here for now) - When in or recovering from a crash I have to stop on the stairs, go slowly and still have residual chest pains for an hour after - Nausea - Headaches - Upper back/shoulder/neck pains - Dizziness with occasional mild vertigo - Racing heart upon standing (worse/intolerable when in a crash) - Heart palpitations - Had been waking up with panic attacks, but this has abated since using a steroid nasal spray for allergies (that I didn't realise I had?!) - Restless leg syndrome with increasing discomfort/sometimes pain in lower legs - Food sensitivities to wheat, meat and dairy (I'm vegan and low gluten) - Instant memory recall of stuff even like my friend's names is tricky, messing up sentences and word finding - Probably not surprisingly my anxiety and depression and agoraphobia have got worse during this time as I feel so physically helpless and am relying on the help of friends for basic living tasks I've had a bit of a nightmare getting any treatment or tests. I can go into more detail if anyone is interested but I've had no luck with the CFS/ME services. My GP is going to send me to a rheumatologist because she now suspects fibro, but I don't think she really knows what's going on as this time last year she didn't even realise I couldn't work?! (I've only been seeing her for the last 20 months). Blood tests: Normal other than - high B12 (Not sure of number, I do supplement with b12) - ESR of 27 (21 this time last year) Had a mini home sleep study in Sept 2015 which showed some issues that might be UARS (a little like sleep apnea) but due to my general health and agoraphobia I haven't been able to get a full sleep study as the centre is far out of my city (Brighton, south of UK) and I don't know anyone with a car and public transport is a huge no. Sorry this is so long. I've been meaning to post here for ages but anxious as I'm undiagnosed and have mental health issues. However, I don't want to sound dramatic but I feel sometimes as if I'm dying and I feel like I really need help. I know some people here have it worse than me and I don't mean to seem too needy. I just feel very stuck and afraid because I feel so profoundly unwell. Does anyone have any advice or pointers?