Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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swollen throat, bad sleep, CFS wrse aftr rtxn

Discussion in 'Rituximab: News and Research' started by Whit, Sep 9, 2013.

  1. Whit

    Whit Senior Member

    Bay Area
    swollen throat

    Not Sore. swollen. Maybe swollen bfore rtxn but much worse after. , it's been 8 months on rtxn and over two months since last infusion.

    Causing (worse) apnea. Had a home sleep study and apnea is significant.

    Anyone else? Any ideas?

    gargle with salt water helps the swollen throat a bit.

    This seems to help as well:

    Will try this next:

    "Red root is a lymphatic stimulant useful in tonsilitis, sore throats, swollen lymph nodes and fluid-filled cysts. "

    Any problems with these? If echinacea stimulates immune sys, bad idea aftr rtxn?

    bad sleep

    Pre-rituxan I used to usually sleep through the night, at least the majority of the time, even if not the same quality of sleep as I got pre-CFS. I haven't slept through the night once in the 5.5 months since RituxanIt's getting to be a pretty bad situation. I wake up a lot, and often can't get back to sleep after only 4 hours. I'm really sleepy during the day. When I don't actually wake up, I almost always toss and turn and sort of "half wake up" all the time.

    D Ribose didn't used to affect my sleep, but since Rituxan, if I take it during the day (last dose way before bed time) or even in AM only, I lay in bed in a kind of half sleep state where I can't get all the way to sleep.

    I had mild sleep apnea before Rituxan, and tha'ts gotten worse. But I think there is something more going on here as well given the "half sleep" (worsened by sugar).

    There was a change immediately after Rituxan.

    (update- been 8 mnths and slp a bit better BC of no sugar/carbs for 6hrs bfr bed). But still nt good. Apnea worse.

    Curious if anyone else has noticed this?

    CFS also wrse

    I can't talk. Can't type/text enough to communicate. Haven't had a conversation with someone in 8 months...

    NK17 likes this.
  2. alex3619

    alex3619 Senior Member

    Logan, Queensland, Australia
    Interesting. No ideas as yet, but I am thinking about it.
  3. SOC

    SOC Senior Member

    Is it possible you have an infection or reactivation of a latent infection from B-cell depletion?
    paolo likes this.

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