Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

Switching from Valtrex to famciclovir

Discussion in 'General ME/CFS Discussion' started by el_squared, Oct 15, 2015.

  1. el_squared

    el_squared Senior Member

    Messages:
    104
    Likes:
    56
    HI there peeps,

    My Stanford doc had me take Valtrex to treat high EBV. I only took half the dose for about 10 days. I was pretty miserable a lot of the days -- headaches, flu symtoms, and swollen lymph nodes.

    When I told her the symtoms she suggested I switch to famciclovir.

    So, do you think this will cause the same flu-like reaction? Will it be any better?

    Meanwhile an enterovirus blood panel just came back high for Cosackie A and B. Not sure what the course of action will be on that. And now I'm wondering what high blood test results are considered more relevant to CFS -- the high EBV, the high HHV6, or the high cosackies.

    thanks,
    Laura
     
  2. minkeygirl

    minkeygirl But I Look So Good.

    Messages:
    4,678
    Likes:
    4,652
    Left Coast
    I was not able to take valtrex because of bad reactions but I have no problem with Famvir.

    You just have to try and see. I strongly recommend starting really low and go up slowly

    I started with 250 mgs and held until I felt ok. (I had some pain). Then i'd go up another 250 and hold. There is no rush to get at the max dose.

    I'm now at 1000 no problem.

    Halcyon responded to your virus question on your other post.

    Btw Posting the same thing in multiples places can get confusing for everyone. Comments get split between multiple posts so you may miss stuff and it takes a lot of energy for people to answer and figure out what they saw where.
     
    Mackee likes this.
  3. el_squared

    el_squared Senior Member

    Messages:
    104
    Likes:
    56
    Thanks. I had two primary issues so I split them into two questions -- please note the two headlines.
     
  4. SOC

    SOC Senior Member

    Messages:
    7,839
    Likes:
    16,560
    I agree with Minkegirl. You might want to take out the part in the original post that refers to enteroviruses since you started another thread specifically on that. It will avoid confusion from people answering the same questions on multiple threads. :)
     
    minkeygirl likes this.
  5. minkeygirl

    minkeygirl But I Look So Good.

    Messages:
    4,678
    Likes:
    4,652
    Left Coast
    @el_squared i did know you had two posts but was thoroughly confused when i saw the same question on the post about valtrex.
     

See more popular forum discussions.

Share This Page