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Summary of Recent Significant Findings in Research of ME/CFS

Discussion in 'General ME/CFS News' started by SDSue, May 15, 2015.

  1. SDSue

    SDSue Southeast

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    Good 6 page summary here - could be used as a handout for those less-than-informed doctors. ;) While it's not all-inclusive, it does hit the high points in each category of research. (I don't know how to copy and paste a chart, so this is a picture)

    ETA: I found the source. Paul Watson, aka @thegodofpleasure on Twitter. Thanks Paul!

    Screen Shot 2015-05-15 at 7.05.08 PM.png
     
    Last edited: May 15, 2015
    AndyPandy, catly, ahimsa and 28 others like this.
  2. SOC

    SOC Senior Member

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    Great find @SDSue! I will print out this 6 pages and carry them with me to my approaching appointments with the local hematologist/oncologist and PCP. I now have slightly less trepidation going in, and a lot more confidence that I can effectively argue against their prejudices.
     
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  3. SDSue

    SDSue Southeast

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    I’ll be sending it to a certain neurologist I once knew lol.
     
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  4. Mary

    Mary Forum Support Assistant

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    Great information @SDSue! what sort of site is app.box.com which compiled all this information? I went to app.box.com but it wanted me to log in - it looks sort of mysterious! :)
     
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  5. SDSue

    SDSue Southeast

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    That’s a great question! I have no idea about app.box.com. I ran across it on Twitter today. Were you able to link to the spreadsheet?

    I dug around and found the source, Paul Watson, which I added to my original post.
     
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  6. SDSue

    SDSue Southeast

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    @thegodofpleasure I’d be happy to take this down and let you post and get full credit for your marvelous work. Sorry for the confusion!
     
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  7. SOC

    SOC Senior Member

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    Glad we now have a source. :)

    Thanks @thegodofpleasure for your excellent work!
     
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  8. taniaaust1

    taniaaust1 Senior Member

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    Thanks to Paul (thegodofpleasure) for putting this together. Much appreciated. If my computer manages to download it, I too will be using it to give to my doctors. (I really hope you don't mind that people are copying this for their doctors).
     
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  9. adreno

    adreno PR activist

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    Box.com is just an online cloud service where people can store files, similar to Dropbox or Google drive. They have nothing to do with the compilation of the document.
     
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  10. msf

    msf Senior Member

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    Wow, I hadn't seen that Blomberg paper before - 25% with signs of Cpn infection! You'd think someone like Lipkin would have noted this and tried to follow up on it.
     
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  11. Sidereal

    Sidereal Senior Member

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    With what funds?
     
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  12. msf

    msf Senior Member

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    The funds Lipkin used for the general pathogen study.
     
  13. Mary

    Mary Forum Support Assistant

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    I was able to link to the spreadsheet. Thanks again @SDSue, and thanks to @thegodofpleasure!
     
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  14. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    EXCELENT! thank you!
     
  15. AndyPandy

    AndyPandy Making the most of it

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    SDSue likes this.

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