• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Summary of My Thoughts for What Might Work for Different Subsets

boohealth

Senior Member
Messages
243
Location
south
She was pretty sick. Not severe like Whitney, if thats what you mean. I don't like what the drugs have done. I keep my mouth shut. Its short term gains and long term losses.
 

Justin30

Senior Member
Messages
1,065
Inborn errors of metabolism. See #3 of my original post

Sounds like it definately could be a link to true Neuro ME but infectioys onset and outbreaks that present with the same syptoms make me think otherwise.

But I think you are onto something with this for sure.