I'm wondering if any of you knowledgable PWCs might be able to suggest what might be causing my deteriorating health. I was diagnosed with CFS 14years ago.
Since December last year Ive been slowly going down hill. Definitely not a crash but a slow decline. Major symptoms are feeling as tho I have the flu without any cold symptoms, and OI. The flu like feeling goes on for a couple of hours after I return to bed. Also aching muscles and of course, fatigue. All of which I'm used to, but previously got relief after resting. Resting not helping at all now. No longer getting a lift from hydroxB12 injections. Unable to leave the house and prefer to be in bed. In November last year I was able to take my disabled husband for a holiday - the best Ive been since being diagnosed.
Earlier investigations found high H2S although no bad gut bacteria, a stack of food allergies and leaky gut. Have not had any appetitive for years.
Blood test normal except for lymphocytes being below the normal range, and dropping 35% from July last year. No obvious sign of infection. I started a course of antibiotics (doxycillin) five days ago, but so far no improvement.
I have a good local GP - but she knows nothing about CFS. My CFS doctor is Don Lewis (a follower of Kenny D Ms regime) who is 1000 ks away in Melbourne and with whom Ive only ever had telephone consultations. He has done a lot of investigations and has been helpful, but limited. So decided it was time I turned to the wisdom of PR.
Something seems to have changed in my body, but I don't know what areas I need to have investigated or what I should look for. Any suggestions what I should be looking for, or suggested treatments to try?
Many thanks, Wendy
Since December last year Ive been slowly going down hill. Definitely not a crash but a slow decline. Major symptoms are feeling as tho I have the flu without any cold symptoms, and OI. The flu like feeling goes on for a couple of hours after I return to bed. Also aching muscles and of course, fatigue. All of which I'm used to, but previously got relief after resting. Resting not helping at all now. No longer getting a lift from hydroxB12 injections. Unable to leave the house and prefer to be in bed. In November last year I was able to take my disabled husband for a holiday - the best Ive been since being diagnosed.
Earlier investigations found high H2S although no bad gut bacteria, a stack of food allergies and leaky gut. Have not had any appetitive for years.
Blood test normal except for lymphocytes being below the normal range, and dropping 35% from July last year. No obvious sign of infection. I started a course of antibiotics (doxycillin) five days ago, but so far no improvement.
I have a good local GP - but she knows nothing about CFS. My CFS doctor is Don Lewis (a follower of Kenny D Ms regime) who is 1000 ks away in Melbourne and with whom Ive only ever had telephone consultations. He has done a lot of investigations and has been helpful, but limited. So decided it was time I turned to the wisdom of PR.
Something seems to have changed in my body, but I don't know what areas I need to have investigated or what I should look for. Any suggestions what I should be looking for, or suggested treatments to try?
Many thanks, Wendy