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Stomach biopsy, anything specific ME/CFS Doctors looks for, that my Gastro Dr. could biopsy for?

Discussion in 'General ME/CFS Discussion' started by Jennifer J, May 18, 2016.

  1. Jennifer J

    Jennifer J Senior Member

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    Hi, Everyone. I need your help again, please. I'm going to be meeting with a Gastroenterologist. She will be doing an endoscopy on me without any kind of numbing or anesthesia. I only hope to do this once and hopefully not need to do it again for years, if ever.

    I am also hoping someday (this fall or next year) to maybe see KDM or one of the ME/CFS Doctors in the Bay Area. The only doctor of our medical condition I've been able to see so far is Dr. Chia. (He did blood work that shows I have enteroviruses.)

    Here's my questions: Is there anything in particular they (the ME/CFS doctors) would look for regarding me having ME/CFS that I could ask her to biopsy/test for? And should I/could I have anything sent to their labs?

    Thank you for any ideas, and knowledge, it helps a lot. :hug:
     
    Last edited: May 18, 2016
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  2. Catjbro

    Catjbro

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    That does not sound pleasant. Wishing you all the best with the procedure.
     
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  3. shannah

    shannah Senior Member

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    Seems to me they can confirm enteroviruses through a stomach biopsy.
     
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  4. Sushi

    Sushi Moderation Resource Albuquerque

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    Some patients have had PCR tests for viruses from stomach tissue. Apparently it can be easier to find there than in the blood.
     
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  5. msf

    msf Senior Member

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  6. Jennifer J

    Jennifer J Senior Member

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    @Sushi, @msf, and @shannah, thank you! :)
     
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  7. valentinelynx

    valentinelynx Senior Member

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    After reading (some of) Afrin's new MCAS book: Never Bet Against Occam, I would love to have my GI biopsies tested for excessive mast cells. Apparently, this test is rarely done unless very specifically requested.
     
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