I am interested in knowing how you are progressing after the stem cell therapy. I'm considering the TVAM and/or Stem Cell therapy with Dr. Arata for my daughter
Hi
@Naomi40, I am sorry for the long delay in replying. My own personal opinion, is that one adipose stem cell treatment will not be enough for ME. And it's easy for a
US doctor to take some fat and send it to a lab in the US so that the fat stem cells can be duplicated. But the US laws are old and backwards. It's upsetting to think that the FDA owns my own fat ( as soon as it lands inside of a laboratory that intends to multiply it). So the US lab (with your fat) can duplicate it legally, but its considered as an experiemental drug and under jurisdiction of the FDA. So then you need the lab send your fat stem cells to a clinic outside of the US, so that you can get an injection.
When I last researched this a few months ago, my only option was to file a request with the FDA for "compassionate use" so that I could get my stem cells from a US lab sent to my US doctor. But this option is not cheap either.
In summary, I would not waste your money on a one time $5-6k in office treatment (remove fat, derive stem cells, and get it injected back in same session)
Depending on the severity of illness and your financial options, I would recommend researching the cost of leaving the country to get multiple treatments (outside of US to take out fat, send to a lab, get injection) vs US doctor remove fat and send to US lab, then get US lab to send outside of country. You could also see if a doctor could fill out the FDA compassionate form, to see if you can stay in the US to get treatments.
The FDA and Big Pharm are more powerful that the NRA, so its a fight to get any help for our illness even with no FDA approved treatments for it. Many people are too ill (different diagnosis) to travel outside of the US for treatments, and are essentially waiting to die until our Congress stands up to the lobbyists that pay them.
Regarding TVAM, I am not familiar with it.
If you are interested in exploring other ME treatments, please feel free to PM me.
Thank You,
GD