Despite Our Losses, People with ME/CFS Want More
We've been cheated by ME/CFS and we all know it. That's a no-brainer, if you'll pardon the cognitive pun. And loss didn't just result from the bad things that befell us. It also encompasses the good things that just ... never came. The absence of bounty. Of wholeness. Of peace.
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Start at the Top (Call for Action campaign)

Discussion in 'Action Alerts and Advocacy' started by WillBeatCFS, Oct 25, 2010.

  1. WillBeatCFS


    The Call to Action campaign has shown writing can get the attention of people with real power to change things. But asking Mr. Collins to change the CDC or Dr. Frieden to change the NIH won't work -- it's like asking Bill Gates to change BP Oil Co. (wrong CEO, no can do!). But if we ask people to do what they can WITHIN their area of influence, who knows how fast things can change?

    See lots of links here and elsewhere for ideas on what to write. And, for these busy people, less is generally more.

    Here are the top people's contact info:

    President Obama (why not start at the top? But probably need to wait until 11/3 or after.)
    (it's a form to prevent spamming)

    Secretary of Dept of Health and Human Service (ie, the health care big cheese):
    Kathleen Sebelius

    Director of the CDC (entire agency, not just CFS research):
    Thomas Frieden, MD, M.P.H.
    Phone......: 404-639-7000
    Fax........: 404-639-7111

    Director of the NIH:
    Francis Collins
    Phone......: 301.496.2433
  2. camas

    camas Senior Member

    Thanks for posting this. I particularly like the idea of writing Kathleen Sebelius.

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