Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Stanford Brain MRI and Immune Profiling Chronic Fatigue Syndrome (CFS) Study

Discussion in 'Active Clinical Studies' started by Dolphin, Jun 20, 2017.

  1. Dolphin

    Dolphin Senior Member

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    From: https://cfsme-registry.info


     
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  2. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I wonder why just right-handed people. $150.00 wouldn't go far for international travel, but I hope some who are within a reasonable distance will be able to participate.
     
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  3. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    They are looking at changes in the brain, so don't want left-right confounds to get in the way of identifying such changes. A really large study might be able to include both.
     
  4. TiredSam

    TiredSam The wise nematode hibernates

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    I was about to look into that, but I'm a lefty. Never been called a confound before :wide-eyed:
     
  5. Valentijn

    Valentijn Senior Member

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    Not to your face anyhow :cool:
     
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  6. alex3619

    alex3619 Senior Member

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    Well here is something to confound even me. I am right handed, but I do many things left handed due to muscle damage (presumably ME related) on my right arm ... I simply did too much. So am I right handed, or left handed? What impact would that have on the brain's handedness?
     
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  7. 62milestogojoe

    62milestogojoe What's a forum then?

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    Hi Dolphin, thanks for the information. I underwent MRI scan to rule out CVA during the 4 months of eliminatory testing prior to diagnosis with ME. Nothing showed up.

    At Osaka university, PET scanning showed revelatory results with everybody scanned with ME showing areas of brain inflammation and none of the healthy controls. Just a thought but I think PET scanning is the way to go.
     
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  8. 62milestogojoe

    62milestogojoe What's a forum then?

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  9. Dolphin

    Dolphin Senior Member

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    I am no expert but believe there are different ways to do an MRI so your null result may not translate to a null result in this study.
     
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  10. 62milestogojoe

    62milestogojoe What's a forum then?

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    Hi Dolphin, I shot off the hip and will ask at the hospital where I work. We MRI scan. There may well be techniques I am ignorant of. Here is a link to the translated paper. http://jnm.snmjournals.org/content/early/2014/03/21/jnumed.113.131045.full.pdf
     
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  11. Dolphin

    Dolphin Senior Member

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    This study is still recruiting as of February 23, 2018.
     
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  12. 1gooddog

    1gooddog Senior Member

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    Olympic Peninsula, WA
  13. 1gooddog

    1gooddog Senior Member

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    I am 70, with cfs and I have a long history that bears researching. I grew up in SW Iowa on home grown food and clean meats. I lived near and visited several rivers, such as Missouri. We had chickens and our own eggs. I had every childhood disease and vaccination.

    I grew up on a farm. There are lung disorders from working in chicken house and on river banks. I cleaned horse stalls and delivered baby pigs.

    I had glandular fever in 4th gr. I had mono at 19. Moved to a small city in Iowa. After high school we moved to Seattle, then back to IA. Later NE. I had the original series of polio vaccine. Later the sugar cube method. I have had a tendency to get strep in many areas of my body.

    I have had erisipilus.
    My lifelong experiences cover a lot of territory.

    I refuse to reveal righty or lefty. I have an innie What does it matter

    I have had all types of mris in the past year, and past 20 yrs.
     

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