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Sore Throat following physical activity

SOC

Senior Member
Messages
7,849
judi --
May I ask, in order to better answer your questions -- are you relatively new to the illness, or just diagnosed?

I have students coming any minute, but I'll come back and answer your questions is a couple of hours or so.
 
Messages
41
Location
Winfield, Illinois
I've been going to doctors and saying "somethings wrong since about '05" they kept telling me I was perfectly fine and I embraced that even though in the back of my mind I knew otherwise - then in '08 I had a day where I became so sick that I ended up in a hospital, in '09 I go the sore throat that lasted for almost 2 years and that's when I diagnosed myself with CFS. I spent the money to get tested for XMRV - they said it was positive for what thats worth in light of all thats happened since. Since then I focused on the medical community for help, I wanted to believe in doctors, they convinced me I was depressed and gave me a ton of pills, the pills made me feel better and then it turned ugly, I am newly off drugs and now I'm trying to learn the nuances of this illness so I can try to help myself and stop relying so heavily on doctors. I've read a lot of things on this forum and, most of what I read is over my head. I'm asking questions that most already understand, but I am desperate to understand how to take care of myself, because I feel that so far I've done more harm to myself than good and I don't want to continue down that path
 
Messages
41
Location
Winfield, Illinois
judi --
May I ask, in order to better answer your questions -- are you relatively new to the illness, or just diagnosed?

I have students coming any minute, but I'll come back and answer your questions is a couple of hours or so.


and thank you for anything you can share, don't tax yourself over it, but any bit helps
 

SOC

Senior Member
Messages
7,849
I've been going to doctors and saying "somethings wrong since about '05" they kept telling me I was perfectly fine and I embraced that even though in the back of my mind I knew otherwise - then in '08 I had a day where I became so sick that I ended up in a hospital, in '09 I go the sore throat that lasted for almost 2 years and that's when I diagnosed myself with CFS. I spent the money to get tested for XMRV - they said it was positive for what thats worth in light of all thats happened since. Since then I focused on the medical community for help, I wanted to believe in doctors, they convinced me I was depressed and gave me a ton of pills, the pills made me feel better and then it turned ugly, I am newly off drugs and now I'm trying to learn the nuances of this illness so I can try to help myself and stop relying so heavily on doctors. I've read a lot of things on this forum and, most of what I read is over my head. I'm asking questions that most already understand, but I am desperate to understand how to take care of myself, because I feel that so far I've done more harm to myself than good and I don't want to continue down that path

Thanks, judi, that gives me a context to work in. I didn't want to be telling you things "everybody knows" if you were an old hand. :)

First, very few doctors know much about ME/CFS and what they do know is often dangerously wrong, so relying on your local medical community can be problematic. Probably the best thing you can at this point is get to an ME/CFS specialist. It appears that the sooner you get good treatment, the better your prognosis is. No guarantees. There are very few guarantees with this illness.

Most of us came through the same pattern you described -- being told there's nothing wrong, then being told we're depressed -- so we know where you're coming from. We all had to get educated and it takes time.

Try going here http://phoenixrising.me/ and click on the various tabs at the top of the page. About ME/CFS would be a good place to start. That should give you some background info to help you understand what we're all talking about.

Good luck!
 

ukxmrv

Senior Member
Messages
4,413
Location
London
I remember Dr Ramsay talking about exercise intolerance. He was the UK doctor who did a lot of the early work and was involved with the Royal Free outbreak.

He spoke about how exercise reactions was the hallmark of the disease and how patients could react to tiny amounts. One of the things he spoke about was how more exercise especially when already suffering PEM could become culmulative and get worse and worse with the patient getting sicker and sicker, weaker and weaker.

I've noticed that if I have PEM the best thing to do is stop and rest as much as possible.
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
Is continuous inevitable ? Can it be staved off?
"Some symptoms can get worse. If you have a relapsing-remitting pattern it will eventually become a continuously ill with increasing/decreasing degree pattern. "
relapsing - remitting pattern? relapsing means? crash/become ill after pushing? remitting means?.... I can't even guess.

increasing/decreasing - does this mean the symptoms.....well, I'm just confused and I'm sorry for not being able to understand it because it seems so well worded, but yet, I'm confused. If you're up to it can you dumb it down for me a little more? thanks

relapsing- remitting pattern means one is pushing then crashing with symptoms... once a bit better pushing and crashing again etc
That pattern can lead to a permanent worsing of the condition (base line level) if done often enough or hard enough.

As you are very new to the condition and still learning the basics.. I'd like to say I suggest to work on gaining a good overall understanding of the condition before you go delving into the different "theories" for it.. there are a heap of theories out there, none of them proven thou. Get a good grasp of the basics and terminologies first or it will be overwhelming.

eg .. here is a couple of things which will help give you a better overview of the whole condition. There is a good symptom list at http://wwcoco.com/cfids/bernesx.html
The Canadian consesus Doctument for Medical Practioners also is quite easy to understand and will help you to gain some of the understanding you need. http://sacfs.asn.au/download/consensus_overview_me_cfs.pdf (you could print it for easier reading.. also can be handy when dealing with doctors).

Seeing you are also new to the illness, you need to find yourself a good knowable ME/CFS doctor as it's needed and even if you are doing okay now most of the time (.things can suddenly go downhill fast and leave you in a boat without a paddle one could say, also some of the experimental treatments can work better the less time some have had this illness).
 
Messages
13
And a caution -- PEM can also occur with overexertion mentally, not just physically. Since PEM can occur immediately or can lag, it makes it extra hard for us to associate PEM with an activity sometimes.

This sentence really tells how I fell into this illness, not listening to my body as I crashed/recovered, crashed/recovered, until I stopped recovering and stayed in a crash with CFS.

Well over a decade later, I'm now improving, and seeing this reverse cycle happen. Where I've gone from a permanent crash state, to my recoveries get longer, and my crashes get shorter. I didn't think about this until I saw this sentence. Made me realize the improvements I'm seeing.
 
Messages
13
I'm having this problem right now. I've been working out a lot, pushing, pushing, pushing for days. And now I have a sore throat and no other symptoms. I haven't had a crash like this in so long, I forgot what crashes are like. But the sore throat, or the beginnings of a sore throat, are CFS crash symptoms for me.
 
Messages
1
New guy here. Umm, I have noticed lately that I'm having issues whenever I exercise, like going jogging, seems to trigger a week of sinus and throat issues and a feeling like I have a fever yet my temp is actually a taste lower than normal. I haven't been diagnosed with CFS, but I have to wonder. When I was a kid all through school I'd get so sleepy I'd pass out in class. I woke up one day in a different period surrounded by different kids. Talk about embarrassing. I also could sleep through the day into the afternoon before waking. I can still sleep until ten or eleven now if I'm allowed to and wake with an awful headache. Also in the last few years I've had trouble with tingling on one side, my right hand and cheek. Sometimes the tingling washes over me along with a funny looking thing in the right hand side of my vision of both eyes, like a horizontal electrical arc. I am also now having abdominal pain above my navel that according to a scope is mild gastritis. How can I find out for sure what I have? I've been told it's anxiety...which as far as I'm concerned is a lazy doctor's copout. Anxiety is not a thing for me. I am far from "anxious" , I'm more irritated that my body seems to be crapping out on me at 37. Sorry for rambling.
 

*GG*

senior member
Messages
6,389
Location
Concord, NH
New guy here. Umm, I have noticed lately that I'm having issues whenever I exercise, like going jogging, seems to trigger a week of sinus and throat issues and a feeling like I have a fever yet my temp is actually a taste lower than normal. I haven't been diagnosed with CFS, but I have to wonder.

When I was a kid all through school I'd get so sleepy I'd pass out in class. I woke up one day in a different period surrounded by different kids. Talk about embarrassing. I also could sleep through the day into the afternoon before waking. I can still sleep until ten or eleven now if I'm allowed to and wake with an awful headache. Also in the last few years I've had trouble with tingling on one side, my right hand and cheek.

Sometimes the tingling washes over me along with a funny looking thing in the right hand side of my vision of both eyes, like a horizontal electrical arc. I am also now having abdominal pain above my navel that according to a scope is mild gastritis.

How can I find out for sure what I have? I've been told it's anxiety...which as far as I'm concerned is a lazy doctor's copout. Anxiety is not a thing for me. I am far from "anxious" , I'm more irritated that my body seems to be crapping out on me at 37. Sorry for rambling.

I look at this way, some people are ill from age 7 or 17 etc..At least I got to live a little more than these poor souls. I came down with CFS at 33, now 46.

This forum is for Rambling etc..

GG
 

Dechi

Senior Member
Messages
1,454
I started having flu-like symptoms about 4-6 weeks ago. Sometimes a sore throat for 1 day, sometimes allergies and a runny nose for 2-3 hours, sometimes just feeling down like when you habe the flu for 3-4 hours and then back to being my usual fatigued person. I started going back tthe gym at about the same time, so there is most probably a connection between the two.

It sucks, the gym is a place I lile to be, even if It takes me almost 1 hour to do 4 minutes of exercise...