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The central issue and this is important is that it is not a replacement for real medical therapy that works to eliminate the physical cause of the illness..
I could not agree more - both with the above and with everything else you wrote. I hope it didn't seem like I think CBT can "cure" CFS/ME, etc.
And when I say that it has helped me a lot, I should make sure it's clear that I mean psychologically, both with learning to live with my physical limitations (coping) and with issues I've struggled with my entire life (anxiety, low self-esteem, tendency to push myself way too hard, irritability, etc.), which might have contributed to my downward slide in the mid-2000s but certainly don't explain my symptoms now.
Also I wouldn't call it a miracle or anything. It does require a lot of work and thinking on the part of the patient, and you have to remind yourself to use what you've learned or you'll slide backwards.
And I agree in general that good science is hard to find. I would imagine that any researcher would have a bias that they want to get a positive result. And most studies of something as complex as the human mind OR physiology are riddled with methodological flaws or shortcomings that make the results questionable, even dangerous in some cases.
So CBT, as used in studies to date to try to "treat" or improve the physical symptoms of CFS/FMS/IBS/whiplash/etc.: bad.
CBT in general, done correctly: can be a very useful tool (IMHO).