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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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SO what is my diagnosis?

Wifi123

Senior Member
Messages
159
I suffer the following symptoms:

Neurological:

Headaches; feel as though my head is going to explode; dizziness; difficulty concentrating; memory loss; brain fog; irritability, mild depression and anxiety; insomnia; restlessness; fatigue; weakness; muscle spasms; numbness, tingling, and burning sensations of the head/face, arms and legs; muscle and joint pain; ankle/foot numb and tingling pain; and “flu-like” symptoms.

Cardiac:

Palpitations, arrhythmias; pain or pressure in the chest; and blood pressure is normally normal, but heart rate may become slow or fast off and on.

Respiratory:

Sinusitis; asthma-like symptoms; and shortness of breath.

Dermatological:

Face, arms, and legs burning, tingling and itchy; and blood ruptures under skin of legs and thighs like radiation poisoning (not bruising from blood thinners or contact).

Ophthalmologic:

Pain or burning eyes; pressure in and behind the eyes; deteriorating vision; floaters; cataracts; and eyes feel as though they are swollen.

Others:

Digestive problems; abdominal pain; nausea; testicular pain and swelling; dryness and swelling of lips, tongue, mouth, and throat; great thirst; dehydration; intermittent nosebleeds; metallic taste in mouth all the time; hair loss; pain in the teeth that are filled; impaired sense of smell; and extreme ringing in the ears.

But, my basic and constant symptoms are: muscles and joint pain, chronic fatigue, sleep disorder, headaches, digestive problems, mind fog, tinnitus, burning/tingling/numb sensations over body, and basically a compromised immune system.
 

SOC

Senior Member
Messages
7,849
We're not doctors here and it's against forum rules to practice medicine without a license. :)

Your best bet is to find a specialist to see if it is ME/CFS. While your symptoms could be ME/CFS, there are other things that could be causing some of your symptoms. I hope for your sake that it's not ME/CFS, but something more treatable.

Perhaps some of our more knowledgeable members could suggest some tests that might help your GP do a diagnosis.
 

Wifi123

Senior Member
Messages
159
Do you have metal fillings? Have you been checked for Lymes?

Yes, I removed amalgam fillings which helped much, but posted thinking I might get a response from other people who may be suffering from the same symptoms.
 

Wifi123

Senior Member
Messages
159
We're not doctors here and it's against forum rules to practice medicine without a license. :)

Your best bet is to find a specialist to see if it is ME/CFS. While your symptoms could be ME/CFS, there are other things that could be causing some of your symptoms. I hope for your sake that it's not ME/CFS, but something more treatable.

Perhaps some of our more knowledgeable members could suggest some tests that might help your GP do a diagnosis.

Have been around the merry-go-round of doctors and specialists, I posted to see if there were other people who may suffer from similar symptoms. All symptoms are similar to CFS, ME, FMS, BMS, IBS and no real diagnosis, because there are no biomarkers.

As I said I was hoping that there were others on this forum who suffer the same symptoms.
Thanks anyway.
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
Have been around the merry-go-round of doctors and specialists, I posted to see if there were other people who may suffer from similar symptoms. All symptoms are similar to CFS, ME, FMS, BMS, IBS and no real diagnosis, because there are no biomarkers.

As I said I was hoping that there were others on this forum who suffer the same symptoms.
Thanks anyway.

While there isn't one biomarker, there are a bunch of markers that, that if abnormal, taken together indicate likely ME.

Sushi
 

Wifi123

Senior Member
Messages
159
Thanks Sushi, I've discovered that most of my tests are not abnormal, but I believe that CFS, ME, and FMS sufferers are all the same syndrome but at different extreme levels of symptoms, and my symptoms are the same as those symptoms.