International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Shingles vaccine. Yes or no?

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by BEG, Aug 20, 2011.

  1. SOC

    SOC Senior Member

    I think this is the difficulty for PWME working with uninformed GPs. In my daughter's case, my husband specifically asked the doctor if the chicken pox vaccine would be okay given our daughter's ME/CFS and was told that there are no problems with that vaccine, it's been given for years, yadda, yadda, yadda. They just don't get that what's good for everybody else is not necessarily good for us. :rolleyes:

    I wonder if Dr Vernon was speaking more specifically about flu vaccines, which are usually killed virus vaccines. I have a hard time imagining anyone who knows anything about ME/CFS suggesting PWME should intentionally be injected with a live (even attenuated) herpesvirus given how much trouble herpesviruses give us ordinarily.
  2. Ocean

    Ocean Senior Member

    I've had bad vaccine reactions too and have made that same decision so far.
  3. slayadragon

    slayadragon Senior Member

    I've heard many, many stories of people whose CFS came on or greatly worsened shortly or soon after getting an adult vaccine. The stories that I've heard that vaccines can be problematic to us are convincing to me, while the arguments of "experts" are unconvincing to me. Personally, I would do everything in my power to avoid such vaccines.

    Best, Lisa
    Shellbell and Ocean like this.
  4. Shellbell

    Shellbell Senior Member

    Just to give my two cents worth, my regular doc and practitioners all went over the side effects (more like possible adverse reactions) of vaccinations and both told me to avoid all of them because of my ME/CFS. They also went on to warn against my own children having any further vaccines because of the genetic link.
    slayadragon likes this.
  5. voner

    voner Senior Member

    I was reading this thread and I want to clarify my comment about talk to Suzanne Vernon.

    I was at a meeting in Denver are your two ago and someone asked a question about getting the flu vaccine. Dr. Vernon said that all the experts that she has asked have said to get a vaccine.

    I think it's important to keep in mind ME/cfs people are very heterogeneous group.

    You might consider asking the question to Dr. Vincent Racaniello, on his virology blog. I'm curious what his answer would be.

    BEG: Personally, I stay away from the flu vaccine, but I did get a shingles vaccine. I know this make no sense to many people, but it's a personal decision and humans are not totally logical people.
    WillowJ likes this.
  6. BEG

    BEG Senior Member

    Southeast US
    voner, thanks for the additional information. If you don't mind, could you tell us how you tolerated the shingles vaccine?
  7. fibrodude84

    fibrodude84 Senior Member

    I have had shingles, maybe it kicked in my CFS. I'd consider the shingles vaccine if it helped CFS but I can't take live vaccines since I'm immunocompromised.

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