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Sharpe: Somatic symptom count scores do not identify patients with symptoms unexplained by disease:

MeSci

ME/CFS since 1995; activity level 6?
Messages
8,231
Location
Cornwall, UK
Beware the second-listed author (St0ne). He is a fan and prolific proponent of the 'functional somatic' theory or whatever his latest favoured term is.

You will find some synonyms here on his weird site, including hysteria.
 

chipmunk1

Senior Member
Messages
765
Beware the second-listed author (St0ne). He is a fan and prolific proponent of the 'functional somatic' theory or whatever his latest favoured term is.

You will find some synonyms here on his weird site, including hysteria.

the site doesnt make any sense. it's not logical nor coherent.

it states it is about symptoms that are due malfunctioning of the nervous system that are not due neurological disease.

Therefore one must conclude if your nervous system doesn't work right it is not diseased if it is not understood why it is not working. :bang-head:

Brain imaging is beginning to show us how the nervous system can go wrong in patients with functional and dissociative symptoms.,

This picture shows a SPECT scan of patients who had functional weakness and sensory symptoms on one side of their body. The scan shows that when they had these symptoms, there was a part of the opposite side of the brain which was not working properly (shown in yellow)

These types of scan show that the nervous system and brain function does go wrong in these illnesses. But it doesn't mean that you can't do anything about it

So they have shown that the brain is not working and this does somehow prove that it is not physical?

There is much that is still not known about what goes wrong in the nervous system to cause functional symptoms, but it is not a complete mystery.

In many other neurological diseases you can see what the problem is, either on a scan, for example multiple sclerosis, or under a microscope, like Parkinsons disease

Patients with functional symptoms do not have damage to their nervous systems so its not surprising you can't see it on a scan.

changes on the cellular level also do not show up on scans and might be hard to identify, neither would inflammation, receptor malfunctions. The brain is barely understood yet these folks believe if something doesn't show up on an MRI it's not there.

A large part of the case studies on the site do not seem to get well even with treatment. One would think that the better more successful cases were listed. The patients do not seem to get better than what you would expect what would happen if you did nothing or gave placebos. Treatments are antidepressants and CBT.

They also try to downplay symptoms as part of the "therapy". The theory is built upon the fact that they are not knowledgeable enough to identify what is wrong which with a perverted logic somehow proves that they are right.
 
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MeSci

ME/CFS since 1995; activity level 6?
Messages
8,231
Location
Cornwall, UK
changes on the cellular level also do not show up on scans and might be hard to identify, neither would inflammation, receptor malfunctions. The brain is barely understood yet these folks believe if something doesn't show up on an MRI it's not there.

I think it is possible to image some of these things now - scanning technologies are improving all the time.

Another thing that used to be on the site - don't know if it still is, as it's impossible to do a page search or other required searches due to the strange way it's set up - he spouts some pseudoscience about the 'interface between the mind and the brain' as though there was actually some knowledge of its existence or nature.
 

chipmunk1

Senior Member
Messages
765
Another thing that used to be on the site - don't know if it still is, as it's impossible to do a page search or other required searches due to the strange way it's set up - he spouts some pseudoscience about the 'interface between the mind and the brain' as though there was actually some knowledge of its existence or nature.

we can't even say that mind/brain are not the same. he also talks about hardware and software hinting behavioural psychotherapeutic intervention might re-programm your software(mind). At the same time he says the programming of the mind is so much more complicated than a computer. If this is true why do they recommend ultra-simplistic approaches such as CBT. Is this sophisticated re-programming?

Patients with functional symptoms do not have damage to their nervous systems so its not surprising you can't see it on a scan. Instead the nervous system is not functioning properly.

If you were a computer its like having a software problem rather than a hardware problem. If you have a software bug on your computer, it might keep crashing or work really slowly. You wouldn't solve that problem by opening up the computer and looking at the components. You wouldn't see anything if you did an x-ray of that computer.

You'd have to solve it by reprogramming the computer, working out which programs were causing the problem.

Human beings are obviously more complicated than computers. Our thoughts, behaviour, sensations and emotions are our programs.

I doubt that it is just this. All of what is mentioned is conscious. There are lot of processes which run on their own like heartbeat, breathing. Why would you believe that you can program all with emotions and thoughts?

what's even worse is that the brain structures that are mentioned would develop before words would exist in mammals or even reptiles!.

Do they believe they can access and re-program them with words?
Can these parts be re-programmed at all?
Is there anything scientific about it?
Could you re-program them into dysfunction? (If a primitive part of your brain doesn't work you might die.. )
Has anyone ever become disabled due to faulty re-programming with an unskilled CBT therapist?

As he said: the brain is so much more complicated than a computer. Even computer programmers have a hard time avoiding mistakes and can programm faulty software. Strangely CBT does work for everything. It does access all brain structures and re-programs them efficiently without adverse effects. Is that a realistic claim?

http://www.funktionellasymptom.se/download/i/mark_dl/u/4008025646/4534429360/Stone - Bare Essentials Functional Symptoms.pdf

He claims that 50%(!) of neurology outpatients have some kind of functional somatoform problem.

other claims:

Don’t believe all the physical diagnoses in the medical notes. They may not be correct. ‘‘Asthma’’ may be panic disorder, the appendix or uterus may have been normal even though surgically removed.

Explanation
This can go a long way. Sometimes a single good explanation is sufficient for recovery. However, the
way you say things is probably more important than the terminology you use. There is no ‘‘one size fits
all’’ and no ‘‘right way’’ to do it. Nonetheless, there do seem to be some important ingredients towards a
successful explanation (table 3). Like cooking or skiing though, you need to practise and to want to do it better next time

Why does he believe the brain can be re-programmed with a single explanation? Does this make any sense?

What is the patient’s understanding of the problem? What did they think of the clinic letter/leaflet? If they flatly disbelieve your diagnosis or have no memory of the letter or leaflet then further treatment is unlikely to be
worthwhile. If they are making some effort to understand it but need more help, then consider how you are going to supply this.

why wouldn't re-programming work if they don't remember the leaflet? Does this make any sense?

If this is not a superstition what is it?

Do not expect to help all patients; just because they have no disease does not mean they
‘‘should’’ get better. Perhaps only 1 in 4 severely affected patients will do well.

"Just because they have no disease does not mean they should get better". Does this make any sense at all?

1 in 4 is no better than nature taking it's course. So the treatment doesn't work for anyone except the mild cases that either get better on their own or learn to tolerate their symptoms.
 
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MeSci

ME/CFS since 1995; activity level 6?
Messages
8,231
Location
Cornwall, UK
I note that you mention Freud in your signature, @chipmunk1. I am fairly sure that Stone has at least one approving reference to him on that site.