August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
Discuss the article on the Forums.

Share your experience (UK Only): Online focus group for people with chronic illness

Discussion in 'General ME/CFS News' started by JD_Lucas, Nov 14, 2017.

  1. JD_Lucas


    I received this email today from the Chronic Illness Inclusion Project in the UK. If anyone is willing to share their experience of chronic illness it's beginning in February or March 2018 (UK residents only)

    We will be holding an extended focus group to find out about the experiences, needs, opinions and aspirations of people with chronic illness in the UK. This research is part of the Disability Research on Independent Living and Learning(DRILL) programme funded by Big Lottery.

    The research will take place in online forum, beginning in February or March 2018. The discussions will lead into co-producing a manifesto for social change to share with policy makers and other disabled people's organisations.

    We want to recruit 20 people who reflect the diversity of the chronic illness community.

    We are looking for people who are willing and able to commit to online written discussion averaging two hours a month. Living with chronic illness ourselves, we will, of course, understand and accommodate fluctuating health.

    Unfortunately we are unable to offer any financial rewards for participation in this research.

    If this interests you, please follow this link to our registration questionnaire.

    If this extended focus group isn’t suitable for you at the moment, don’t worry there will be other opportunities to get involved, such as short surveys.

    Hoping this finds you as well as possible.

    Recruitment Questionnaire here:

    Best wishes,
    Catherine and Jenny
    Dolphin likes this.

See more popular forum discussions.

Share This Page