The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Severe Chills

Discussion in 'Hypersensitivity and Intolerance' started by Bunnehbunn, Dec 6, 2018.

  1. Bunnehbunn

    Bunnehbunn

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    I tried looking for an answer to this on the search but couldn't find anything I didn't try or pertained to me. I've gone to several doctors and all I got was neglect, rudeness, and disbelief of symptoms. I was able to live with severe fatigue, brain fog, and muscular/bone pain but now I've gotten severe chills. The only thing that would help in the past would be methylfolate, methylb12, and copper(I think a mix of zinc and folate/b12 brought about the deficiency). Now I'm stuck with chills that I can't figure out, that just are getting worse and don't respond to anything; wearing several coats and being under several blankets does nothing, hot shower help sometimes but only while in it. Does anyone know what could cause such chills and what I could try? They feel 100x worse than alcohol withdrawal or opiate withdrawal, I could even handle those chills but this is just so severe.
     
    RebeccaRe likes this.
  2. Wishful

    Wishful Senior Member

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    What's the temperature like where you are? It was -20C here this morning, and yes, I felt chilled after being outside for an hour or so. Are you feeling the chills even in a room at standard room temperature? What's your body temperature (oral or whatever) while you're feeling deeply chilled?

    If your body temperature is normal, then it could be a problem with however our bodies register temperature. Otherwise, it might be metabolic, with your cells somehow not generating enough ATP, or not using it properly.

    Does vigorous exercise make you feel warmer, or does it make the chills worse? That's assuming you can do exercise.

    Another thing to experiment with: extra carbs or extra fats. A fat-heavy meal makes me feel much warmer some time later.
     
  3. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    The only patient I've ever seen with severe chills had malaria. This doesn't mean that's what you have. Is there any chance you were exposed to malaria?
     
  4. RebeccaRe

    RebeccaRe Moose Enthusiast

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    I have terrible chills as well. And once I'm chilled it's impossible to warm up without an outside heat source--it's as though my body just can't produce its own heat easily. So I got an outside heat source: this electric blanket has been my lifesaver over the past several years. Sometimes when I'm cold I can go under this blanket and turn it up to the maximum setting, and it actually takes a while for me to even feel like the blanket's warm against my body because I'm so chilled.

    I have also found that my feet tend to get cold faster than the rest of my body, and they get more cold than the rest of my body. So if I put effort into making and keeping my feet warm (such as wearing warm socks, putting toe warmers in my shoes when I go outside, and resting my feet on a microwaveable hot pack), it makes a huge difference. So try to pay attention to your body and see if there's any particular part, your toes, your ears, your hands, your core, your lower back, that seems to crave heat more and make sure it gets the heat it needs!
     
  5. Shoshana

    Shoshana Northern USA

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    I find this, also!

    I do this, often, as well!
     
  6. joanierav

    joanierav

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    that could be a symptom of hypothyroid. have you had your thyroid checked? its an easy fix. joanie
     
  7. Haley

    Haley

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    For me, chills are my 'stop what you are doing right now and rest or pay severely' warning. I also seem to go the opposite way - overheat when I reach my limits (in summer). Seems to have something to do with my body's lack of ability to regulate internal temperature, but other than that I'm clueless (thyroid has been checked and is fine)...

    Hopefully someone can shed some more light :)
     
    Art Vandelay likes this.
  8. Judee

    Judee Senior Member

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    I also think chills are part of a shock response when our body is going into crisis like maybe hypoglycemia, adrenal, low electrolytes, drastic change in bp, etc. I find it helps to start checking vitals when this happens.

    We have a pulse oximeter that has a plethysmograph that shows odd heart beat patterns of the heart. Using one was the first time we found out my mom had PVCs which were confirmed by our PCP when he had her do a Holter for 24 hours.

    Also checking vitals will sometimes show that your bp is dropping or even too high. My mom gets chills when hers is too high so having a bp cuff is good too.

    Don't forget to take your temperature as well.

    Some of these might give you an idea of what is going on but always follow up with your doctor or go to ER if you feel like it is getting out of hand especially as chills can sometimes be related to heart attack.
     
  9. Bunnehbunn

    Bunnehbunn

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    @Wishful it's 0C here but before I came down ill I would be able to go out without a coat in that temperature. My oral temp is fine, exercise and high fat doesn't help; I did notice lentils sometimes temporarily helped that's how I got the copper idea.
    @CFS_for_19_years no way possible
    @joanierav because my chills were the worse they've ever been yesterday I made an appointment with a doc, he tested my t3, t4, tsh. Tsh was fine in the past but never had the t3 and t4 checked (other doctors refused).
    @RebeccaRe I love the idea but if a hot shower doesn't really help not sure if an electric blanket would, I've tried a blanket out of the drier and that wouldn't help either.
    @Judee I went to the ER about 2 months ago sick as a dog with many debilitating symptoms and a fever, they sent me home and it took a week for it to get better. Doctors keep refusing to check my adrenals but I know I have severe adrenal fatigue, my blood pressure is low on average but not super low. I think I experience hypoglycemia but I've never tested it with a glucose monitor since I ran out of strips, I was getting blood sugar that would jump from 120 to 80 at one time. The chills have been constant though and all vitals have been steady.
     
  10. Wishful

    Wishful Senior Member

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    Tsh just isn't sufficient to check for all the possible thyroid malfunctions. Others here are much more knowledgeable about what thyroid tests need to be done, so maybe one of them will have some suggestions. If your other thyroid hormone levels are somewhat abnormal and the doctor says that it's not important because your Tsh is normal, find a better doctor. I had an endocrinologist admit that my free T3 & T4 readings were abnormal, but he refused to consider any alternative to 'simple hypothyroidism'. Some doctors are more concerned with their own convenience than the health of their patients.
     
  11. Bunnehbunn

    Bunnehbunn

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    I've learned that oh too well. Whatever is wrong with me could have been caught early before getting this bad if doctors didn't neglect me because the diagnosis was to hard for them.
     
    Last edited by a moderator: Dec 7, 2018
  12. Bunnehbunn

    Bunnehbunn

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    Well I got some lab results back from a couple days ago and my comprehensive thyroid panel is in normal levels. I also have no anemia and intact my labs have been the best they've been in years, my eGFR on kidneys is the highest it's been in 10 years (I've been diagnosed with CKD stage 3 but the labs now shows it's stage 2) and since I've been ill my WBC and neutrophils are in normal range instead of being high.
    Still I'm getting severe fatigue, pain, and chills; I have no clue what could cause these severe chills
     

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