The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Sensitivity to Meds -- What disease should I be tested for?

Discussion in 'General Treatment' started by joejack102, Dec 13, 2017.

  1. joejack102

    joejack102 Senior Member

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    My primary symptom used to be EXTREME sensitivity to meds and herbs. 1,000x's sensitivity. Started at 13 years old. I'm 31 now. I've never really had any other major symptoms.

    For those that are also sensitive to meds... What is the ROOT disorder/cause that you have that I should test for? And what tests would get at the root cause of what disease/condition would cause this?

    I've been working with one of the top neurologist at a major medical center here. He has access to potentially order any test that exist. However, what test should I request him to order?
     
  2. RWP (Rest without Peace)

    RWP (Rest without Peace) Senior Member

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    @joejack102,

    Sorry to hear about that. As you might imagine, I can think of many possible options. A friend here at PR just recently sent me some info on porphyria. Here are the links:

    http://truemedicine.com.au/wp-content/uploads/1801porphyria
    http://www.porphyriafoundation.com/about-porphyria

    It can result in that outcome. Do you have allergies or MCS?

    If you go to my Profile page on my avatar, you can find a link to a chapter from a book about my and my wife's (PWR (Peace without Rest) 30-year illness. Her MCS (including sensitivity to herbs, medications) got dramatically better (occurs later in the book). I can give you details later.

    RWP + PWR
     
  3. joejack102

    joejack102 Senior Member

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    Well the only allergies I know of were what they call “seasonal allergies” even though I had to take antihistamines all year long.

    Then I used different types of Choline supplements (CDP Choline and Choline Bitartrate) that excessive use permanently made my sensitivities to meds/herbs go away ever since. It also caused my allergies to disappear.

    Can you explain more about what helped your wife and her situation?
     
  4. Strawberry

    Strawberry Senior Member

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    Seattle, WA USA
    Interesting thought to look into. I am related to someone in the "Famous Porphyria Sufferers" section, but the other link says there is no treatment at all. :( If there is no treatment, it is just wasted energy to research IMO...
     
  5. RWP (Rest without Peace)

    RWP (Rest without Peace) Senior Member

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    OK, it was a professional-grade herbal antiparasitic treatment (OTC). I am sending you more info by PM.

    RWP
     
  6. Awags1986

    Awags1986

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    Ohio
    anti parasitic, eh? My son and I tend to have increase of symptoms 3 days prior to the new and full moon...when parasites come out of hiding to reproduce. Had you noticed a similar pattern? What caused you to go the parasite route?
     
  7. RWP (Rest without Peace)

    RWP (Rest without Peace) Senior Member

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    @Awags1986

    Yes, before we began treatment 22 years ago, we were aware of that phenomenon.

    The reason for that route was that my wife, @PWR (Peace without Rest), was diagnosed 22 years ago with ovarian cancer. As one of the most severe MCS and EMF patients we've heard about, she could not do conventional treatment. The antiparasitic treatment was the only, and actually the best possible, treatment open to her. The beginning of the story (laying the foundation of ME, MCS & EMF) is found on my profile page (Chapter 1). Feel free to read that, and if you'd like the rest of the book, I can tell you how to proceed.

    RWP + PWR
     
  8. RWP (Rest without Peace)

    RWP (Rest without Peace) Senior Member

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    @Strawberry

    Well, as you know, there are typically 2 camps; one says that nothing can be done and the other does. In our case, we have found great help here at PR with the MTHFR protocol, something that one camp might poo-poo. So we are desperate enough to find and do anything that could help, even if it's small. That's because those small things can add up and lead to bigger answers.

    RWP + PWR
     

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