Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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Seeking Facebook Activists

Discussion in 'Action Alerts and Advocacy' started by Andrew, Dec 15, 2011.

  1. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    I'd like to start raising some issues with federal handling of CFS, and I'd like to do it on the relevant government pages. But I don't think it would do much if I did it alone. As far as I can see, a single post without responses won't do anything. Are any of you interested in joining me in working out how to do this, and then carrying it out.
     
  2. Nielk

    Nielk

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    I'm ready, willing to do whatever you think will get some results.:)
     
  3. Nielk

    Nielk

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    Am I the only one receptive to this?
     
  4. Tuha

    Tuha Senior Member

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    i would also join any common effort.
     
  5. *GG*

    *GG* senior member

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    I hope not, I cannot commit firmly, I work and come rather tired most days and often don't go on Facebook, but I do subscribe to the Forums and am pretty good at voting on something daily, when that occurs.

    GG
     
  6. Andrew

    Andrew Senior Member

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    I've been trying to find another thead here with no luck. Or maybe I saw this on a site. It is a list of facebook pages that are sponsored by DHHS. I'm trying to figure out which one would be best to post on regarding CFS and or CDC. Anyone know?
     
  7. *GG*

    *GG* senior member

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    Concord, NH
  8. Snow Leopard

    Snow Leopard Hibernating

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    There are also the possibility of "Tweetstorms" http://globalfree.wordpress.com/2010/10/02/tweetstorms/

    I have no idea how effective they are though, it is a good idea to wait until one has a good concise message before doing it. (oh and you don't all send the same message, but variations on the idea).
     
  9. Andrew

    Andrew Senior Member

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    I found this. http://www.hhs.gov/facebook/

    Even though I have a facebook account, I don't participate. I don't understand the culture. Can someone point me to a facebook page where a group of people are voicing complaints. The topic doesn't matter.

    BTW, despite that fact that I started this thread, I am only able to get to this every few days. CFS is not the only illness I have.
     
  10. Nielk

    Nielk

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