I was just thinking about the fact that many of the people who will be making policy decisions about XMRV in the months to come dont know how serious a disease ME/CFS really is. Many, if not most, of them have been subjected to the misinformation campaign of the last quarter century, that its just being fatigued. I was suddenly reminded of the scene in A Christmas Carol when Scrooge is being asked for a donation for the destitute. I think that attitude is part of the problem we face. We can try to tell them that ME/CFS devastates lives. We can try to convey the heartbreak of the stories we read every day on these forums. But they dont see it, they dont believe it, because they dont want to. Really, no one wants to be burdened with that kind of knowledge; out of sight, out of mind. Its much more comfortable to not know. People see things like this when they cant escape it. When it happens to them or their loved one (and sometimes not even then). Thats where star power comes in. When someone so famous that a large number of people feel like they know him or her --someone whom people love-- gets sick, that can put a human face on the disease. Of course, it has to be someone that people wont blame for getting sick (what can you expect, he asked for it with that wild lifestyle or its probably really drug addiction, you know how they are). But even then, with ME/CFS people dont look sick until theyre close to dying from it. So how do we make them see the truth? How do we convince them this is serious? When they don't want to believe it?