Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Scientific American: Baffling CFS Set for Diagnostic Overhaul

Discussion in 'General ME/CFS News' started by Firestormm, May 16, 2014.

  1. Firestormm

    Firestormm

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  2. SOC

    SOC Senior Member

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    Not sure what to think. It's certainly better than other garbage we've seen published, but there's still some misinformation, or misleading information anyway. For example, depression is not a defining symptom of ME/CFS, and there's no mention of immune abnormalities.

    Still, overall it's probably more on the positive side than the negative. This is probably the way our public relations is going to go. It won't jump suddenly from the current horribly incorrect misinformation to strictly accurate information overnight. So this is a step in the right direction.
     
  3. alex3619

    alex3619 Senior Member

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    Even in that short piece they made a few mistakes. I wonder if we can comment somewhere?
     
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  4. Marco

    Marco Grrrrrrr!

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    I used to read Scientific American back in the day - can't remember why now!
     
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  5. caledonia

    caledonia

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    justinreilly and alex3619 like this.
  6. SOC

    SOC Senior Member

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    Oh geez. They used one of those "tired people" stock photos, too. God, I hate that. It's so overdone and so unrepresentative of the illness. Do they use stock pictures of people coughing when they write an article about lung cancer?

    And some twerp in the comments is conflating ME/CFS with chronic fatigue. :depressed:
     
  7. alex3619

    alex3619 Senior Member

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    Just posted this.
     
  8. caledonia

    caledonia

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    I hate the people that post with their magic bullet solutions to "chronic fatigue". You invariably see these in the comments sections below articles about CFS. It's allergies, get some exercise, change your diet, eat garlic. Bleh. It's become one of my pet peeves.
     
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  9. NK17

    NK17 Senior Member

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    This article is superficial, full of old and stuffy misconceptions.

    IMO it's garbage!

    Any of us who has been living with ME would do a better job at describing where we are right now with real research and in describing the highly debilitating symptoms.

    And yes @SOC they added one of those 'tired people' stock photos, the ones that make you wish to look like that, fully dressed up, with make up and at an office desk ...
     
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  10. justinreilly

    justinreilly Senior Member

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    I wrote to the author. My letter below. You can tweet to her @KHCourage and/or send her a message at:
    http://katherinecourage.com/contact/?contact-form-id=170...

     
    cigana, ahimsa, NK17 and 4 others like this.
  11. Snow Leopard

    Snow Leopard Hibernating

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    Me too. Mostly because everyone I know with CFS or ME has already tried the above - most of us have tried extreme dietary changes like cutting out dairy or wheat etc. I mean if it was that obvious then why wouldn't we try it? Oh, we did and it didn't work.
     
  12. xchocoholic

    xchocoholic Senior Member

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    The problem is how cfs is diagnosed. I'm sure the people who post these majic cures were diagnosed with cfs and assume they're being helpful. We need realistic diagnostic criteria. Tc ... x
     

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