Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
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"Say it for ME" on helium - awareness campaign

Discussion in 'General ME/CFS News' started by Sasha, Apr 1, 2016.

  1. Sasha

    Sasha Fine, thank you

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    Novel!

     
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  2. Sasha

    Sasha Fine, thank you

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    Not sure if you always have to do it with helium:

     
  3. shannah

    shannah Senior Member

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    Over on youtube, the write up below the first video says you don't have to use helium.



    Published on Mar 31, 2016

    It's hard to say. It's harder to live with. Take part in the challenge, and help us spread the word about this chronic illness!

    To take part in the challenge, just record a video of yourself saying "Myalgic Encephalomyalitis" as many times as you can... ON ONE BREATH! Don't forget to nominate some others, and let me know when you're done!

    NB: You don't have to use helium. Though if you wish, you can think of other ways to make your video stand out... ;-)

    Check out Jon Campling's original vid here: https://youtu.be/eoOupY62rxc

    This challenge is not about raising money – it's about raising awareness. But if you WOULD like to donate to charities to support the victims and researchers of this debilitating disease, here are a few you could look at...

    http://www.actioncind.org/ (Canada – research & support)
    http://www.investinme.org/ (UK – research & support)
    http://smileforme.org.uk (UK – victim support)
    http://www.25megroup.org/fundraising_... (UK – support for extreme victims)
    http://www.meresearch.org.uk (UK – research)
    http://www.tymestrust.org/ (UK – support for younger victims)
    http://www.ncf-net.org (USA – research)
    http://www.mefmaction.com/ (Canada – research & support)
     
    Dolphin, MeSci, mango and 2 others like this.
  4. mango

    mango Senior Member

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    this is great, made me very happy :):thumbsup:
     
    mfairma, hellytheelephant and Sasha like this.
  5. Snowdrop

    Snowdrop Rebel without a biscuit

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    This is terrific. Posted a link on twitter.
     

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