August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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Save the Date for the Rare Diseases/Orphan Products Summit

Discussion in 'Action Alerts and Advocacy' started by *GG*, Sep 1, 2011.

  1. *GG*

    *GG* senior member

    Concord, NH
    NORD will co-sponsor the 1st Annual Rare Diseases/Orphan Products Summit on Oct. 11-13, under the auspices of the Drug Information Association (DIA). Collaborating organizations include EURORDIS (the European Rare Disease Organization), FDA, NIH, and the Duke Clinical Research Institute. Register Here >

    Come and Meet...

    Francis Collins,Director of the National Institutes of Health (NIH)

    Michael Astrue, Commissioner of Social Security Administration

    Janet Woodcock, Director, FDA Center for Drug Evaluation and Research

    Mark McClellan, former FDA Commissioner

    John Crowley, Chairman and CEO of Amicus

    In addition to plenary sessions to which senior government, industry, and patient representatives are being invited to speak, there will be three tracks at the meeting:

    Track A will be for academic and industry investigators and will build on a three-day rare-disease investigator training course first offered in October 2010
    Track B will be for patients and patient organizations
    Track C will be for industry and the investment community
    Special attention will be paid to innovations in orphan product development such as biomarkers, registries, natural histories and use of social media. In addition, there will be opportunities for networking and for exhibitors.

    This international summit will provide a unique opportunity for all stakeholders in the rare disease and orphan product space to learn and to develop a joint agenda.
  2. glenp

    glenp "and this too shall pass"

    Vancouver Canada suburbs

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