Sushi
Moderation Resource Albuquerque
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Hi again everyone,
....I also want to add that there is absolutely no need for anyone to opt out. This research is not associated with Phoenix Rising (though they kindly gave me permission to post here to about it) and no-one is under any obligation to take part. If anyone would like to do an interview, then that would be great, but I am also happy to answer questions and to receive comments and suggestions on here or by email (ellen.brady@postgrad.manchester.ac.uk) regardless.
Thanks,
Ellen
Hi Ellen,
Another interesting (and sad) point is that by interviewing only ME patients in the UK, you won't get a representative sample of ME patients and their use of the internet. The UK is one of the hardest countries for ME patients to get medical help--which will probably be reflected in how UK patients use internet forums.
It is possible that, due to lack of availability of ME specialists and/or sympathetic GPs who want to learn, UK patients are put in the position of needing to "self treat" more than patients in some other countries--though because of the world-wide lack of doctors competent in this field, this is one of the common reasons to participate in internet forums.
If you chose to use an interactive internet platform for your research, you could interview patients from all over the world and perhaps get a more representative sample
Sushi