"Reporter Excoriates Chronic Fatigue Study: I Stopped at 14,000 Words-Enough Was Enough"

[Kyla]

http://alumni.berkeley.edu/californ...oriates-chronic-fatigue-study-i-stopped-14000

Excerpt:

Reporter Excoriates Chronic Fatigue Study: I Stopped at 14,000 Words-Enough Was Enough
By David Tuller

Years ago, I never thought to myself, ‘Hey, I’ve gotta be the guy who writes about chronic fatigue syndrome.’ I mean, why would I? It just sort of happened. When research suggested in 2010 that the illness might be linked to a mouse retrovirus, I wrote a piece about it for The New York Times.

After that I wrote another story, and then more stories, and then a few more—probably a dozen or so in all. But within a couple of years the mouse retrovirus hypothesis fell apart. And media interest in the illness vanished.

That was a problem for me. In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness...

 

[Esther12]

Reporter Excoriates Chronic Fatigue Study: I Stopped at 14,000 Words-Enough Was Enough
By David Tuller

Only just started reading, but already I like the fact that it looks like he wrote that headline.

 

[JohnnyD]

My comment .. of appreciation.

Dear David Tuller, on behalf of my sister, who has suffered for 26+ years with this hideous disease, we cannot thank you enough. From your earlier articles we always knew you ‘got it’ and showed a lot of promise if you’d just keep writing. You’ve exceeded our expectations… you are approaching, if not already there, hero status! Thank you so much!

 

[CFS_for_19_years]

Brilliant, well-written piece by David Tuller.

 

[leela]

Wow, he just keeps it coming...and coming...total hero!

 

[meandthecat]

A beacon in a long dark night.

Thank you Mr Tuller

 

[Sasha]

I just added a comment, with a link to the new petition to the HHS:

http://my.meaction.net/petitions/call-for-cdc-and-ahrq-to-investigate-pace

If anyone else posts, I hope they'll mention it.

Be aware that this comments section removes all your paragraph breaks and faces the reader with a wall of text. So keep it short, or no one will read it! I'd have posted less if I'd known.

 

[Sasha]

There are some terrific, moving comments on that article, by the way.

 

[ScottTriGuy]

Just added short simple comment.

 

[Undisclosed]

I am loving it -- the comments are excellent too. !!!!!

 

[LisaGoddard]

So refreshing to see a new mood especially among reporters and scientists.