I haven't watched this (I rarely watch long videos) but thought it might be of interest to somebody
http://fibrocfssupportcenter.org/re...campaign=Mar+2014+Newsletter&utm_medium=email
http://fibrocfssupportcenter.org/re...campaign=Mar+2014+Newsletter&utm_medium=email
In-Person Meeting: 2nd Annual Caregiver Appreciation Day
Our March meeting was about our caregivers. We aimed to accomplish two goals:
- Thank our caregivers.
- Give our caregivers a place to ask questions and see that we all experience fatigue, brain fog, pain, etc.
We had a panel of caregivers which included Jamie Liptan (Dr. Liptan’s husband), Amy Mills (her mom has had fibro Amy’s entire life) and Tony Gambino (his girlfriend has ME/CFS).
Tami Stackelhouse acted as moderator asked the following questions:
- When you met your wife/husband, was he/she healthy or already sick?
- How did you feel when your wife/husband was diagnosed?
- Did you feel like you really understood how he/she felt at first?
- Did your understanding change as things went on?
- When did you REALLY get it – in terms of how sick he/she was?
- How did his/her diagnosis change your life and/or relationship?
There was time for audience questions to the panel members.
Tami began the meeting with a short demonstration of “The Spoon Theory.” http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/