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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Recommendations for good educational videos?

gabriella17

gabriella17

Senior Member
Messages
165
Location
Phoenix, AZ
I'm in the process of getting a ME diagnosis, although I've had it for years. It's really important to me that I find material to explain ME to those who are closest to me, primarily my 2 kids in their twenties, who still don't understand the nature and severity of my illness.

I'm putting together a playlist, and I'm looking for videos from the scientific & medical communities featuring doctors or scientists that ideally:

provide education about ME
give a picture of what it's like (eg. orthostatic intolerance - inability to wait in lines, etc)
what the impact is on one's life, advocate for those with ME.
Are not so dry that a viewer would get bored after 2 minutes.

I hope this is not to tall of an order! :D

Thanks
 
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