• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Really want patient input

usedtobeperkytina

Senior Member
Messages
1,479
Location
Clay, Alabama
We want this to be the patients' voice. For it to be, we need patient input.

The MCWPA team is pleased to announce that five entries have come in for the public service announcement contest. We are now inviting the patients to go to the Patient Discussion Board and give their feedback between now and April 3 at midnight EST.

http://forum.mcwpa.org/viewforum.php?f=8&sid=2a4532b83e8a9d2c2fba567adc07c71a

You will find it under Print and Video Advertisements with each entry having a separate thread.

After April 3, the contestants will decide what, if any, changes they will make. And then you will be able to vote on which one you prefer.

This PSA is going to be distributed to T.V. stations around the nation. A letter is being prepared now to be given to patient organizations asking for help in getting the PSA to the cable companies. We would also like to have print advertisements in newspapers across the nation that is designed in a similar look and message to the PSA that wins the contest. MCWPA will be giving $150 per advertisement in co-op money with local organizations pay the balance.

Our goal for the print ads is $3,000 for 20 of them. At this point, we need $1,400 more.

Please post this message on Facebook, message boards and every other place on the Internet you can find to get more input. We would like to see this blasted everywhere. If you see a post someone else put up about this, please comment on it to keep it bumped up. We need buzz.

MCWPA Team