A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
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Questions for Cholestyramine users

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by ebethc, Jul 2, 2015.

  1. ebethc

    ebethc Senior Member

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    If you've tried cholestyramine AND it worked for you:

    1. How long did it take for you to notice a POSITIVE difference?

    2. How many weeks or months did you use it?

    3. How frequently do you go back for another round (if at all)?


    thanks.
     
  2. *GG*

    *GG* senior member

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    Been on it for years!

    GG
     
  3. ebethc

    ebethc Senior Member

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    so, you're continually on it? ie. you take it every day?
    how long did it take to work?
     
  4. *GG*

    *GG* senior member

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    Yes, continually on it. My Dr does the VCS test and I am supposedly still toxic, Dr Shoemaker was also big on CSM and Visual Contrast test?

    I had high levels of mercury aroun 2009, had it retested about 1 year later. Levels came back much lower. So it could depend upon what you are trying to detox?

    GG
     
    ebethc likes this.
  5. fromstrawtomore

    fromstrawtomore

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    1. How long did it take for you to notice a POSITIVE difference?

    It took two months of TID-QID dosing (4g CSM) to pass the VCS test.

    2. How many weeks or months did you use it?

    Seven months. Still on it. I changed from compounded to normal (with aspartame) after four months due to cost.

    3. How frequently do you go back for another round (if at all)?

    I go back and forth passing the VCS so I'm continuing full dose. For most long term ME/CFS I would imagine six to twelve months, but sometimes longer, would be expected.
     
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  6. Gingergrrl

    Gingergrrl Senior Member

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    Am bumping this back to top as I am also interested in hearing more reports on CSM.
     
  7. student

    student Senior Member

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    Choly beginner. I am the greenhorn.
    I had used Chlorella binders (Klinghardt. daily 80 small) before this. But I dought that they brought mold out.
    1. Can not tell. – It is my 7th day using 4x dayly 4 g Choly. Iam still brushing my mouth 2x daily, with 1/ 10 of the package. Bevore taking Choly 30min befor the meals. I take poop softeners now in order to not constipate in this first week. (I have gained much benefit from other things: Resistant starch. I was 6 weeks away – from the mold house. I am slowly making progress - with lowering mold load. Room by room. I started myrrhe nasal - plus I block my nose of the whole day.- These things changed a lot for a start.)
    2. this first week - only. And I see my doctor to get perscription for the next 20 days.
    3. Plans are to use it 3- 4 weeks every 3 mounth now.
    My choly. start was – on a 3 days trip to a (semi) safe place. I read Lisas start-up story to prepare my Choly use. First 5 times – I was very cautios. So I used up to 2 g – to get my throught clean (up to 40% material every time). Brushing thees with Choly. Gurgel with Choly-water – like what I did with the „oil drawing“. Also in the head down positions. Yes I had some of the strong mouth reaktions- and I spitted out quite a bit. I felt that slowly I will get used to this material. Than I felt more safe to swallow – and there was no vomiting. I used Oil. I had not eaten (on fasting) and drank a lot of (3 L) water. It was stressfull. But this way everything went well. Appart from constipation for 3 days. I went out, was aktive and did my daily duties. I would do it again.

    regards student

    update. Yes on day 8: My tomie is swolen. Some poo came out. But I do not feel well and little unsafe. So this time I pause with the Cholestyramine.
     
    Last edited: Oct 9, 2015
  8. Forebearance

    Forebearance Senior Member

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    Be sure to eat a lot of healthy, natural fats, student. That will help replace the fats that cholestyramine carries out, and will help with constipation.
     
  9. *GG*

    *GG* senior member

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    Hmm, wish I had issues with constipation.

    GG
     
  10. Dufresne

    Dufresne almost there...

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    Yup, I find it almost impossible to keep weight on when I'm binding.
     
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  11. student

    student Senior Member

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    The first day &night - I feel little better. I could eaven go out to a group meating for this evening.
    So I will pause and trie to get much Cholyst. out of the system.
    Yes, the direction with oil and fat helped me. Thanks.
     
    Last edited: Oct 10, 2015
    Forebearance likes this.
  12. xrayspex

    xrayspex Senior Member

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    hey does anyone know of a place to get cholestryamine without a prescription? I would like to try it--a friend gave me some but it has aspartame and that stuff gives me bad side effects so can t use it . Aspartame will cause headaches rashes depression --back when I drank the new diet pepsi around 1983-before had cfs when diet soda changed to it in early 80s--I noticed that. Was one of first obvious MCS experiences.--anyway, sad they had to a lot of cholestyramine with nutrasweet--can ya get it without that?
     
  13. ebethc

    ebethc Senior Member

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    no idea where to get cholestyramine w/o a rx, BUT there are some natural alternatives... Chlorella or plant sterols are the ones I've heard of ... plant sterols didn't agree w me.. sorry, can't remember why...Here's one product

    https://www.amazon.com/Pure-Encapsulations-CholestePure-Supplement-Metabolism/dp/B0015VJC34?th=1
     
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  14. Jesse2233

    Jesse2233 Senior Member

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    Has anyone seen significant, sustained improvement from cholestyramine?

    I know it's central to the Shoemaker protocol, and, though I'd like to, I haven't been able to find any glowing reviews
     
    ebethc likes this.

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